Evidence map›Paper›PMID 39201146›Full record

ArticleHealthcare (Basel, Switzerland)2024

Patient Perspectives on Social and Identity Factors Affecting Multiple Myeloma Care: Barriers and Opportunities.

Natalia Neparidze, Amandeep Godara, Dee Lin, Hoa H Le, Karen Fixler, Lisa Shea, Stephanie Everson, Christine Brittle, Kimberly D Brunisholz

Abstract read
In one paragraph

Article in Healthcare (Basel, Switzerland), 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

  1. Review
  2. Article
  3. Article
  4. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Natalia NeparidzeYale School of Medicine, Yale University, New Haven, CT 06510, USA.ORCID 0000-0001-9038-077X
Amandeep GodaraHuntsman Cancer Institute, Salt Lake City, UT 84112, USA.
Dee LinJanssen Scientific Affairs, LLC., Horsham, PA 19044, USA.
Hoa H LeJanssen Scientific Affairs, LLC., Horsham, PA 19044, USA.
Karen FixlerJanssen Scientific Affairs, LLC., Horsham, PA 19044, USA.
Lisa SheaJanssen Scientific Affairs, LLC., Horsham, PA 19044, USA.ORCID 0000-0002-3512-0083
Stephanie EversonIndependent Researchers, Goodyear, AZ 85395, USA.
Christine BrittleCorEvitas, Waltham, MA 02451, USA.ORCID 0000-0001-6792-5970
Kimberly D BrunisholzJanssen Scientific Affairs, LLC., Horsham, PA 19044, USA.ORCID 0000-0003-0155-6054

Funding

Yale Clinical and Translational Science Award (U Component)UL1TR001863 · NCATS · YALE UNIVERSITY · PI John H. Krystal, LUCILA OHNO-MACHADO · 2016 to 2026
$102.9M
Janssen LLC NANCATS NIH HHS UL1 TR001863
6 · The paper itself

Abstract

Patients living with multiple myeloma (MM) have a substantial disease burden and face multiple barriers to care. Building upon our previous research using mixed methods, this focus group research aimed to identify patients' priorities regarding specific social and identity-related needs, map these prioritized needs to the disease journey, and describe patient-generated ideas to improve patient support. Participants noted that patients with MM need a range of emotional, social, and financial support throughout the disease journey. They identified initial MM diagnosis and treatment adherence as two critical points in the MM journey where patients need the most support and assistance. The findings of this research suggest that overall, patients with MM need comprehensive support, ideally from a multidisciplinary team consisting of health care providers, patient advocates, social workers, and psychologists to help patients understand their disease and treatment options, make informed treatment decisions, adhere to treatment, and ultimately reduce their disease burden and improve outcomes. This research revealed that patients with MM need varying types and levels of support, with the most common needs including information on disease and treatment, connections to financial resources and support systems, assistance with navigating insurance options, and transportation and logistical support for medical appointments.

Indexed as

access to carehealth equitymultiple myelomapatient-centered careperceived social supports

Identifiers

PMID39201146
PMCPMC11354118

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.