Evidence map›Paper›PMID 39197694›Full record

ArticleJournal of pain and symptom management2024

Addressing Statistical Power and Increasing Diversity in Hospice Research: Electronic Medical Record Participant Identification Compared to Nurse Referral Approaches to Recruitment.

Debra Parker Oliver, Mary Ersek, Patrick White, Lucas Jorgenson, Kyle Pitzer, Abigail Rolbiecki, Masako Mayahara, Karla Washington, George Demiris

Abstract readComparative Study
In one paragraph

Article in Journal of pain and symptom management, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Trial
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Debra Parker OliverDivision of Palliative Medicine (D.P.O.), Department of Medicine, Washington University in St. Louis, Goldfarb School of Nursing, St. Louis, Missouri, United States. Electronic address: oliverd@wustl.edu.
Mary ErsekCorporal Michael J. Crescenz VA Medical Center (M.E.), University of Pennsylvania School of Nursing, Philadelphia, Pennsylvania, United States.
Patrick WhiteDivision of Palliative Medicine (P.W., L.J., K.P.), Department of Medicine, Washington University in St. Louis, St. Louis, Missouri, United States.
Lucas JorgensonDivision of Palliative Medicine (P.W., L.J., K.P.), Department of Medicine, Washington University in St. Louis, St. Louis, Missouri, United States.
Kyle PitzerDivision of Palliative Medicine (P.W., L.J., K.P.), Department of Medicine, Washington University in St. Louis, St. Louis, Missouri, United States.
Abigail RolbieckiDepartment of Family Medicine (A.R.), University of Colorado, Boulder, Colorado, United States.
Masako MayaharaGoldfarb School of Nursing (M.M.), Barnes Jewish College of Nursing, St Louis, Missouri, United States.
Karla WashingtonDivision of Palliative Medicine (K.W.), Department of Medicine, Washington University in St. Louis, St Louis, Missouri, United States.
George DemirisDepartment of Biobehavioral and Health Science (G.D.), School of Nursing, University of Pennsylvania, Philadelphia, Pennsylvania, United States; Department of Biostatistics (G.D.), Epidemiology and Informatics, Perelman School of Medicine, University of Pennsylvania, Philidelphia, Pennsylvania, United States.

Funding

Caregiver Speaks: A Technologically Mediated Storytelling Intervention for Family Caregivers ofIndividuals with Alzheimer's Disease and Other DementiasR01AG059818 · NIA · WASHINGTON UNIVERSITY · PI PARKER OLIVER, DEBRA, ROLBIECKI, ABIGAIL J · 2020 to 2024
$3.6M
ACCESS_Access for Cancer Caregivers to Education and Support for Shared decisionmakingR01CA203999 · NCI · WASHINGTON UNIVERSITY · PI PARKER OLIVER, DEBRA · 2017 to 2021
$3.6M
NCI NIH HHS R01 CA203999NIA NIH HHS R01 AG059818
6 · The paper itself

Abstract

contextRecruitment of targeted samples into hospice clinical trials is often challenging. While electronic medical records (EMR) are commonly used in hospital-based research, it is uncommon in hospice research. The community setting and the variability in hospices and their medical record creates unique challenges.

objectivesThis paper compares recruitment in two hospice randomized controlled trials, each of which had a group recruited by using the EMR identification and a group recruited by nurse referral. We sought to answer three questions: 1) What is the impact of using the EMR to identify hospice participants for clinical research? 2) How do the referral count and consent rate (referrals that ultimately result in verbal informed consent to participate in research) differ between hospice agencies using an EMR participant identification approach compared to those using a nurse referral approach? and 3) What are the challenges associated with using the EMR to identify potential research participants?

methodRecruitment data from two hospice clinical trials was combined into a new database. Data from hospice nurse referral agencies was compared with data from those agencies who participated in EMR-identified referrals.

resultsThe EMR identification process was feasible and efficient, resulting in more referrals and more consented participants than the nurse referral method. Of particular interest is that 8% more black caregivers were recruited using the EMR identification process than the nurse referral.

conclusionsThe EMR-identified recruitment process is the recommended method in hospice research.

Indexed as

Electronic Health RecordsHospice CarePatient SelectionReferral and ConsultationAgedFemaleHospicesHumansInformed ConsentMaleRandomized Controlled Trials as TopicEMR referralHospice clinical trialsRandomized controlled trialsRecruitment

Identifiers

PMID39197694
PMCPMC11565485

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.