Evidence map›Paper›PMID 39190132›Full record

ArticleJournal of cancer survivorship : research and practice2026

Survivorship preparedness and activation among survivors of lymphoma.

Sharon L Manne, Shawna V Hudson, Dena O'Malley, Katie A Devine, Matthew Matasar, Jacintha Peram, Justin Solleder, Elizabeth Handorf, Andrew M Evens

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In one paragraph

Article in Journal of cancer survivorship : research and practice, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Review
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Sharon L ManneRutgers Cancer Institute of New Jersey, 120 Albany Street, Tower 2 Floor 8, New Brunswick, NJ, 08901, USA. mannesl@cinj.rutgers.edu.
Shawna V HudsonDept Family Medicine and Community Health, Rutgers RWJ Medical School, 303 George Street, Rm 309, New Brunswick, NJ, 08901, USA.
Dena O'MalleyDept Family Medicine and Community Health, Rutgers RWJ Medical School, 303 George Street, Rm 309, New Brunswick, NJ, 08901, USA.
Katie A DevineRutgers Cancer Institute of New Jersey, 195 Little Albany Street, New Brunswick, NJ, 08901, USA.
Matthew MatasarRutgers Cancer Institute of New Jersey, 195 Little Albany Street, New Brunswick, NJ, 08901, USA.
Jacintha PeramRutgers Cancer Institute of New Jersey, 120 Albany Street, Tower 2 Floor 8, New Brunswick, NJ, 08901, USA.
Justin SollederRutgers Cancer Institute of New Jersey, 120 Albany Street, Tower 2 Floor 8, New Brunswick, NJ, 08901, USA.
Elizabeth HandorfRutgers School of Public Health, 120 Albany Street, Tower 2 Floor 5, New Brunswick, NJ, 08901, USA.
Andrew M EvensRutgers Cancer Institute of New Jersey, 195 Little Albany Street, New Brunswick, NJ, 08901, USA.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectivesTaking an active role in managing post-treatment care has emerged as a key aspect of promoting a successful transition into survivorship and is associated with better patient outcomes. In this study, we focus on two key aspects of active self-management, activation and preparedness. Activation was defined as understanding one's role in the care process and having the knowledge, skill, and confidence to take on a role in managing self-care. Preparedness was defined as the extent to which individuals perceived they had sufficient information about what to expect after cancer treatments are completed. The study goal was to characterize survivorship preparedness and activation among lymphoma survivors within 5 years of treatment completion in New Jersey and examine the association of sociodemographic, medical, care transition experiences, practical concerns, and psychosocial factors with activation and preparedness.

methodsOne hundred and one Hodgkin lymphoma or non-Hodgkin lymphoma survivors who had completed treatment within 5 years completed a survey of survivorship care experiences (response rate = 34.12%).

resultsApproximately 60% of survivors reported high activation, with similar percentages for higher preparedness. Less activated survivors were significantly (p < .05) younger, married, resided in a more deprived geographic area, and reported more fatigue and information needs. Less activated survivors reported recalling that their providers were significantly (p < .05) less likely to discuss long-term side effects, psychosocial needs, risk-reducing lifestyle recommendations, and how to manage other medical concerns. Fewer care transition practices were most strongly associated with lower preparedness.

conclusionsA significant proportion were not activated for survivorship, and both activation and preparedness were strongly associated with providers' survivorship transition practices. IMPLICATIONS FOR CANCER SURVIVORS: Implementing programs to foster more activation and preparedness for lymphoma survivorship care would benefit from education about recommended follow-up care and healthy lifestyle practices. Providers should routinely ask about their patients' confidence and preparedness for survivorship and provide referrals for appropriate care as needed.

Indexed as

Cancer SurvivorsLymphomaSurvivorshipAdultAgedFemaleHumansMaleMiddle AgedSurveys and QuestionnairesYoung AdultCancerLymphoma survivorshipOncologyPatient activationSurvivorship preparedness

Identifiers

PMID39190132
PMCPMC12988959

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.