Evidence map›Paper›PMID 39189632›Full record

Trial reportAlzheimer's & dementia : the journal of the Alzheimer's Association2024

Sharing health care wishes among older adults with cognitive impairment in primary care: Results from a randomized controlled trial.

Jennifer L Wolff, John G Cagle, Valecia Hanna, Sydney M Dy, Diane Echavarria, Erin R Giovannetti, Cynthia M Boyd, Martha Abshire Saylor, Naaz Hussain, Jenni S Reiff and 4 more

Registry-linked trialAbstract readRandomized Controlled Trial
PubMed Full text at PMC Publisher
In one paragraph

Trial report in Alzheimer's & dementia : the journal of the Alzheimer's Association, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT04593472 (Sharing Healthcare Wishes in Primary Care), which is not on this map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT04593472 nacompletednot on this map

Sharing Healthcare Wishes in Primary Care

TypeinterventionalSponsorJohns Hopkins UniversityRan2020 to 2025Enrolled273ConditionsCognitive ImpairmentArmsSharing Healthcare Wishes in Primary Care (SHARE), Minimally Enhanced Usual Care
3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Trial
  2. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

14 authors.

Jennifer L WolffDepartment of Health Policy and Management, Johns Hopkins Bloomberg School of Public Health, Baltimore, Maryland, USA.
John G CagleSchool of Social Work, University of Maryland, Baltimore, Maryland, USA.
Valecia HannaJohns Hopkins Bloomberg School of Public Health, Baltimore, Maryland, USA.
Sydney M DyJohns Hopkins Bloomberg School of Public Health, Baltimore, Maryland, USA.
Diane EchavarriaJohns Hopkins School of Medicine, Baltimore, Maryland, USA.
Erin R GiovannettiMedStar Health, Columbia, Maryland, USA.
Cynthia M BoydDivision of Geriatric Medicine & Gerontology, Johns Hopkins University School of Medicine, Baltimore, Maryland, USA.
Martha Abshire SaylorJohns Hopkins University School of Nursing, Baltimore, Maryland, USA.
Naaz HussainJohns Hopkins Community Physicians, Frederick, Maryland, USA.
Jenni S ReiffJohns Hopkins Bloomberg School of Public Health, Baltimore, Maryland, USA.
Danny ScerpellaJohns Hopkins Bloomberg School of Public Health, Baltimore, Maryland, USA.
Talan ZhangJohns Hopkins Bloomberg School of Public Health, Baltimore, Maryland, USA.
Vishaldeep Kaur SekhonDivision of Geriatric Medicine and Gerontology, Johns Hopkins University, Baltimore, Maryland, USA.
David L RothDivision of Geriatric Medicine and Gerontology, Johns Hopkins University, Baltimore, Maryland, USA.

Funding

Involving Family to Improve Advance Care Planning for Primary Care Patients with ADRDR01AG058671 · NIA · JOHNS HOPKINS UNIVERSITY · PI WOLFF, JENNIFER L. · 2019 to 2023
$3.8M
Health Services and Outcomes Research for Aging PopulationsT32AG066576 · NIA · JOHNS HOPKINS UNIVERSITY · PI CYNTHIA Melinda BOYD, Jennifer L. Wolff · 2020 to 2026
$3.8M
NIA NIH HHS R01 AG058671NIA NIH HHS R01AG058671NIA NIH HHS T32 AG066576NIA NIH HHS T32AG066576
6 · The paper itself

Abstract

introductionBest practices for conducting advance care planning (ACP) among persons with cognitive impairment exist, but evidence-based models are lacking for the primary care setting.

methodsWe tested a remote multicomponent ACP model (SHARE) versus minimally enhanced usual care in 273 person-family dyads from eight primary care practices.

resultsMean patient age was 88.0 years, 85 (31.1%) were Black/Latino; 189 (69.2%) had moderate-to-severe cognitive impairment. Most (101/145; 69.6%) intervention dyads engaged in ACP. At follow-up, no treatment effect was observed for care partner-reported quality of communication about end-of-life care at 6 or 12 months, but intervention patients reported better quality of communication about end-of-life care at 12 months. Intervention care partners and patients reported greater readiness to engage in ACP at 6 and 12 months, respectively, and increased completion of key aspects of ACP. DISCUSSION: SHARE supported key aspects of ACP processes and communication about end-of-life care. HIGHLIGHTS: Primary care-based models of ACP for persons with dementia are lacking. Involving persons with cognitive impairment in remote ACP is feasible with care partner involvement. Results indicate benefit for aspects of ACP processes and communication about end-of-life care.

Indexed as

Advance Care PlanningCognitive DysfunctionPrimary Health CareAgedAged, 80 and overCaregiversCommunicationFemaleHumansMaleTerminal Careadvance care planningcognitive impairmentprimary carerandomized controlled trial

Identifiers

PMID39189632
PMCPMC11485067

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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.