Evidence map›Paper›PMID 39182053›Full record

ArticleBMC palliative care2024

Patients near death receiving specialized palliative home care being transferred to inpatient care - a registry study.

Camilla Wall, Karin Blomberg, Elisabeth Bergdahl, Helena Sjölin, Fredrik Alm

Abstract read
In one paragraph

Article in BMC palliative care, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Observational
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Camilla WallDepartment of Oncology, Faculty of Medicine & Health, Örebro University, SE 70182, Örebro, Sweden. camilla.wall@oru.se.
Karin BlombergSchool of Health Sciences, Faculty of Medicine & Health, Örebro University, SE 70182, Örebro, Sweden.
Elisabeth BergdahlSchool of Health Sciences, Faculty of Medicine & Health, Örebro University, SE 70182, Örebro, Sweden.
Helena SjölinSchool of Health Sciences, Faculty of Medicine & Health, Örebro University, SE 70182, Örebro, Sweden.
Fredrik AlmSchool of Health Sciences, Faculty of Medicine & Health, Örebro University, SE 70182, Örebro, Sweden.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundThe majority of palliative care patients express a preference for remaining at home for as long as possible. Despite progression of disease there is a strong desire to die at home. Nonetheless, there are transfers between care settings, demonstrating a discrepancy between desired and actual place of death.

aimTo map the prevalence of patients near death undergoing specialized palliative home care and being transferred to inpatient care in Sweden.

methodsA national retrospective cross-sectional study based on data from the Swedish Register of Palliative Care. Patients ≥ 18 years of age enrolled in specialized palliative home care with dates of death between 1 November 2015 and 31 October 2022 were included (n = 39,698). Descriptive statistics were used.

resultsSeven thousand three hundred eighty-three patients (18.6%), approximately 1,000 per year, were transferred to inpatient care and died within seven days of arrival. A considerable proportion of these patients died within two days after admission. The majority (73.6%) were admitted to specialized palliative inpatient care units, 22.9% to non-specialized palliative inpatient care units and 3.5% to additional care units. Transferred patients had more frequent dyspnoea (30.9% vs. 23.2%, p < 0.001), anxiety (60.2% vs. 56.5%, p < 0.001) and presence of several simultaneous symptoms was significantly more common (27.0% vs. 24.8%, p  0.001).

conclusionThe results show that patients admitted to specialized palliative home care in Sweden are being transferred to inpatient care near death. A notable proportion of these patients dies within two days of admission. Common features, such as symptoms and symptom burden, can be observed in the patients transferred. The study highlights a phenomenon that may be experienced by patients, relatives and healthcare personnel as a significant event in a vulnerable situation. A deeper understanding of the underlying causes of these transfers is required to ascertain whether they are compatible with good palliative care and a dignified death.

Indexed as

Home Care ServicesPalliative CarePatient TransferRegistriesAdultAgedAged, 80 and overCross-Sectional StudiesFemaleHospitalizationHumansInpatientsMaleMiddle AgedRetrospective StudiesSwedenPalliative carePalliative medicineTransfers of patients

Identifiers

PMID39182053
PMCPMC11344375

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.