Evidence map›Paper›PMID 39182025›Full record

ArticleBMC geriatrics2024

Conceptualisations of good care and conflicts in live-in migrant care arrangements for people with dementia - perspectives of family caregivers in Germany.

Adele Grenz, Milena von Kutzleben

Abstract read
In one paragraph

Article in BMC geriatrics, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

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2 · The registry

The trial behind it

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Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

2 authors.

Adele GrenzDivision of Prevention and Rehabilitation Research, Carl von Ossietzky Universität Oldenburg, Ammerländer Heerstrasse 140, D - 26111, Oldenburg, Oldenburg, Germany.
Milena von KutzlebenDivision of Prevention and Rehabilitation Research, Carl von Ossietzky Universität Oldenburg, Ammerländer Heerstrasse 140, D - 26111, Oldenburg, Oldenburg, Germany. Milena.von.Kutzleben@uni-oldenburg.de.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundIn Germany, live-in migrant carers provide essential social, emotional and physical support to a growing number of community-dwelling people with dementia. However, opaque legal regulations and employment models as well as a lack of formal supervision for families employing live-in migrant carers contribute to the vulnerability of these already strained arrangements. This study analyses the family caregivers' perspective, their conceptualisations of good dementia live-in migrant care and conflicts that arise in live-in care arrangements.

methodsThe study adopted a qualitative-explorative approach. We conducted focus groups with family caregivers (n = 15) to learn about their perspectives on and experiences with live-in care as a model of home-based dementia care. Due to the restrictions of the COVID-19 pandemic, data collection took place online, which enabled us to include participants from all over Germany in our sample. Data were analysed with qualitative content analysis.

resultsIn this paper, two main categories, Indicators of good live-in migrant care for people with dementia and perceived conflicts, are presented. We identified indicators applied by family caregivers to assess the quality of care provided by migrant live-in carers and its outcomes for the person with dementia. These relate primarily to interpersonal and emotional aspects and a person-centred attitude towards the person with dementia. Conflicts arise when the needs and personalities within the triad do not match, due to intransparent and unreliable work of and communication with the placement agencies, or permanent crisis as a result of the German model with alternating live-in carers.

conclusionOur findings point to the complex dynamics and relationships within live-in care triads and support the theoretical assumption that taking into account the needs of all actors involved is essential for good and stable care arrangements. The conceptualisations of family caregivers of good dementia live-in migrant care offer starting points for a scientific as well as a social and health policy debate about the future regulation of this model of care.

Indexed as

CaregiversDementiaAdultAgedCOVID-19FemaleFocus GroupsGermanyHumansMaleMiddle AgedQualitative ResearchTransients and MigrantsAutonomyConflictDementiaFamily caregiversFocus groupsGood careHome careMigrant live-in careQualitative researchQuality of care

Identifiers

PMID39182025
PMCPMC11344310

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.