Establishing a Research-Related Patient and Family Advisory Council for a Surgical Specialty.

Alessandra Butanis, Bosung Titanji, Ashley E Bartee, Aviram M Giladi, Kenneth R Means

Abstract read

In one paragraph

Article in Journal of hand surgery global online, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it

0cells of the map it votes in

1citing papers in PubMed

–field-weighted citation impact

1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

Building meaningful partnerships: engaging and co-developing a patient advisory council to inform the implementation of person-centred quality indicators in Alberta primary care.Research involvement and engagement · 2026
Article

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Alessandra ButanisThe Curtis National Hand Center, MedStar Union Memorial Hospital, Baltimore, MD.

Bosung TitanjiThe Curtis National Hand Center, MedStar Union Memorial Hospital, Baltimore, MD.

Ashley E BarteeThe Curtis National Hand Center, MedStar Union Memorial Hospital, Baltimore, MD.

Aviram M GiladiThe Curtis National Hand Center, MedStar Union Memorial Hospital, Baltimore, MD.

Kenneth R MeansThe Curtis National Hand Center, MedStar Union Memorial Hospital, Baltimore, MD.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Engaging patients and family members in formal feedback for health care processes can be impactful, especially when cultivating new care and research protocols. However, most surgical groups lack established systems for enlisting these critical stakeholders. This is a descriptive report of how we built our Patient and Family Advisory Council (PFAC) through a multistep process with patients, providers, research staff, and administrators. We also detail how it has advanced research, care, and mutually beneficial collaboration at our hand center. For example, our PFAC has provided vital input on multiple grant submissions, assisted with the development of a web-based digital application for thumb arthritis therapy, and improved our patient care approaches. To successfully create and sustain a PFAC, there must be commitment from multiple stakeholders across clinical, research, administration, and leadership spectra. Through this alliance, all stakeholders can develop better care and investigative strategies.

Indexed as

health carePatient and family advisory councilPatient-centered outcomes research instituteResearchThumb carpometacarpal arthritis

Identifiers

PMID39166205

DOI10.1016/j.jhsg.2024.03.012

PMCPMC11331160

What OpenQuestion holds

Textmetadata

LicenceCC BY-NC-ND

Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.