ArticleInternational journal for equity in health2024
Through the eyes of Spanish-speaking patients, caregivers, and community leaders: a qualitative study on the in-patient hospital experience.
Article in International journal for equity in health, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers, 1 of them a synthesis that pooled it.
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Who cites it
11 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Bridging language gaps in healthcare: a systematic review of the practical implementation of neural machine translation technologies in clinical settings.Journal of the American Medical Informatics Association : JAMIA · 2025Pooled it
- Interpreter use in Nordic paediatric oncology care - a multicentre cross-sectional study.Acta oncologica (Stockholm, Sweden) · 2026Article
- Recruitment and Retention of Racially Minoritized Families in a Pediatric Behavioral Diabetes Research Study.Journal of clinical psychology in medical settings · 2026Article
- Perceived Mental Health and Socioeconomic Impacts of Testing Positive for COVID-19: Qualitative Findings From a Regional Sample in New Mexico.Journal of counseling and development : JCD · 2026Article
- Patient and Caregiver Perspectives on Language Access in Two St. Louis Emergency Departments.Journal of immigrant and minority health · 2026Article
- When Care Depends on the Caregiver: Lived Experiences of Latino Families Navigating Dementia Care Pathways.medRxiv : the preprint server for health sciences · 2026Article
- The Equity Deficit in Revascularization Research: Patient Perspectives Emphasize the Need for Inclusive, Patient-Centered Outcomes.Journal of the Society for Cardiovascular Angiography & Interventions · 2026Article
- "Interpreters don't tell you everything": experiences with medical interpretation among Latino cancer patients and caregivers with limited English proficiency.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Access to Language Interpretation Services at Health Care Facilities Providing Care to Adults Diagnosed with HIV in the United States, 2019.Current HIV research · 2025Article
- Advancing health equity: evaluating AI translations of kidney donor information for Spanish speakers.Frontiers in public health · 2025Article
- Engagement with a Text-Based, Bilingual Blood Pressure Monitoring Program during Postpartum among a Multiethnic Population.MCN. The American journal of maternal child nursingObservational
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Authors and funding
7 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundSpanish-speakers with non-English language preference and complex medical needs suffer disparities in quality of care, safety, and health outcomes. Communication challenges during prolonged hospitalizations for complex illnesses negatively influence how this group engages in their care and decision-making while hospitalized. Limited literature capturing the perspectives of Spanish-speaking patients in this context exists. Given the impact of language barriers on care and medical decision-making, this study documents the experiences of Spanish-speaking patients with NELP and hospitalized with complex care needs as well as caregivers and community leaders.
methodsUsing community-engaged recruitment strategies and semi-structured interviews and a focus group, we gathered insights from Spanish-speaking patients hospitalized for prolonged periods, caregivers, and community leaders from three geographic regions. Data were deidentified, transcribed, translated, coded in duplicate, and analyzed guided by grounded theory using NVivo.
resultsWe interviewed 40 participants: 27 patients, 10 caregivers and 3 community leaders. We identified four major themes: (1) Disconnected experiences impeding interactions, communication, and decision-making (2) Inadequate interpreter services (3) Benefits and consequences of family at the bedside (4) Community -informed recommendations.
conclusionThe study showed that in-person interpreters were preferred to virtual interpreters; yet interpreter access was suboptimal. This resulted in ad hoc family interpretation. Participants noted language negatively impacted patient's hospital experience, including decreasing confidence in medical decision-making. Recommendations from patients, caregivers, and community leaders included expanding interpreter access, bolstering interpreter quality and accuracy, and increasing resources for patient education.
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