ArticleJournal of patient experience2024
Parents Experiences of Racism in the Neonatal Intensive Care Unit.
Article in Journal of patient experience, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
6 citing papers in PubMed.
- Informed nondissent: an underutilized tool for the NICU context.Journal of perinatology : official journal of the California Perinatal Association · 2026Review
- Qualitative Exploration of Black Canadian Parents' Experiences of Having a Preterm Infant and Navigating Racism in the NICU.Journal of advanced nursing · 2026Article
- Staff perspectives on racial inequities in the neonatal intensive care unit: the REJOICE study.Journal of perinatology : official journal of the California Perinatal Association · 2026Article
- The Impact of Race and Ethnicity on Congenital Diaphragmatic Hernia 1-Year Mortality.Pediatric pulmonology · 2025Article
- "It All Starts by Listening:" Medical Racism in Black Birthing Narratives and Community-Identified Suggestions for Building Trust in Healthcare.International journal of environmental research and public health · 2025Article
- Parent and staff focus groups to address NICU racial inequities: "There's radical optimism in that we're in a different time and we're not doing it alone".Journal of perinatology : official journal of the California Perinatal Association · 2025Article
Corrections and comments
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Authors and funding
8 authors.
Funding
Abstract
Few studies have investigated parent's experiences with racism in the neonatal intensive care unit (NICU). Our objective was to explore how parents perceive their interactions with NICU staff and if/how racism in the NICU was experienced. Parents of infants receiving care in an urban NICU completed fixed choice surveys regarding their experiences and demographics, with 6 open-ended questions to elaborate on their fixed-choice responses. Using a constant comparative method informed by Constructivist Grounded Theory, we identified 3 main themes from the comments provided by 97 respondents: Care and harm coexisting, racism often manifesting as neglectful care, and the power differential is most impactful during times of parent advocacy. Parents spoke positively regarding their experiences and also reported disparate treatment attributed to their racial/ethnic identity. Racism was experienced by inappropriate comments and apathy toward parent requests, occurring during intimate interactions between staff and parents. Descriptions of parental advocacy efforts highlighted the lack of power they held in relation to the NICU staff. We recommend strengthening the focus on equity and mitigating power imbalances in the NICU.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.