Evidence map›Paper›PMID 39147941›Full record

ArticleJournal of cancer survivorship : research and practice2026

Supporting follow-up care in colorectal cancer patients: first experiences with the Assessment of Burden of ColoRectal Cancer (ABCRC)-tool.

Britt J M Thomassen, Anke H C Gielen, Jasmijn Baak, Meindert Sosef, Ester Ancion, Christel M J Gielen, Annerika H M Gidding-Slok, Stephanie O Breukink, Merel L Kimman

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Article in Journal of cancer survivorship : research and practice, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Britt J M ThomassenDepartment of Surgery, Maastricht University Medical Centre+, Universiteitssingel 50 (UNS50) K5.442, 6229 ER, Maastricht, The Netherlands. b.thomassen@maastrichtuniversity.nl.ORCID http://orcid.org/0009-0004-2631-5649
Anke H C GielenDepartment of Surgery, Maastricht University Medical Centre+, Universiteitssingel 50 (UNS50) K5.442, 6229 ER, Maastricht, The Netherlands.ORCID http://orcid.org/0000-0002-7854-9349
Jasmijn BaakFaculty of Health, Medicine and Life Sciences, Maastricht University, Maastricht, The Netherlands.
Meindert SosefDepartment of Surgery, Zuyderland Medical Center, Sittard-Geleen, The Netherlands.
Ester AncionDepartment of Surgery, Zuyderland Medical Center, Sittard-Geleen, The Netherlands.
Christel M J GielenDepartment of Surgery, Maastricht University Medical Centre+, Universiteitssingel 50 (UNS50) K5.442, 6229 ER, Maastricht, The Netherlands.
Annerika H M Gidding-SlokDepartment of Family Medicine, Maastricht University, Maastricht, The Netherlands.
Stephanie O BreukinkDepartment of Surgery, Maastricht University Medical Centre+, Universiteitssingel 50 (UNS50) K5.442, 6229 ER, Maastricht, The Netherlands.ORCID http://orcid.org/0000-0002-5445-4011
Merel L KimmanCare and Public Health Research Institute (CAPHRI), Maastricht University, Maastricht, The Netherlands.ORCID http://orcid.org/0000-0002-5717-5704

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

purposeThe Assessment of Burden of ColoRectal Cancer (ABCRC)-tool is a unique tool that includes a PROM focused on health-related quality of life (HRQoL), functional outcomes and lifestyle assessment. Furthermore, it provides visualization of results and treatment advice. The tool aims to support follow-up consultations of colorectal cancer (CRC) patients. The purpose of this study was to evaluate the first experiences of patients and healthcare professionals (HCPs) with the ABCRC-tool.

methodsThe ABCRC-tool was implemented in two Dutch hospitals and used by 25 patients and 5 HCPs during follow-up care. Consultations were audio-recorded and their content was analyzed independently by two researchers. Semi-structured interviews with patients and HCPs were conducted after the consultation. Interviews focused on the overall experience with the tool, ease of use, interpretation of the PROM and the visualized results and on the added value of the tool.

resultsAudio recording revealed that multiple topics, relevant to patients, were discussed during consultations with the ABCRC-tool. Patients and HCPs appreciated the ABCRC-tool as it added structure to the consultation, was helpful in the preparation of consultations and provided useful and convenient treatment options. The tool was easy to use, and the visualization was clear and informative. HCPs suggested that the tool is likely to be most relevant for patients in the first year of follow-up.

conclusionsThis study implies that the ABCRC-tool is of added value for patients and their HCPs. Future research should focus on the evaluation of broad implementation, across a wide range of CRC patients. IMPLICATIONS FOR CANCER SURVIVORS: The ABCRC-tool is a valid tool to support CRC survivors and HCPs to monitor and visualize experienced burden of disease and lifestyle parameters in order to optimize personalized care.

Indexed as

AftercareColorectal NeoplasmsCost of IllnessQuality of LifeAdultAgedCancer SurvivorsFemaleFollow-Up StudiesHumansMaleMiddle AgedNetherlandsBurden of diseaseColorectal cancerFollow-upPatient-centred carePatient-reported outcome measurementShared decision-making

Identifiers

PMID39147941
PMCPMC12906579

What OpenQuestion holds

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.