Evidence map›Paper›PMID 39147110›Full record

ArticleJournal of pain and symptom management2024

Financial Hardship: A Qualitative Study Exploring Perspectives of Seriously Ill Patients and Their Family.

Danae G Dotolo, Christina Clare Pytel, Elizabeth L Nielsen, Jennifer Im, Ruth A Engelberg, Nita Khandelwal

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of pain and symptom management, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed.

  1. Exploring the Impact of Financial Toxicity in COPD: A Qualitative Study.Chronic obstructive pulmonary diseases (Miami, Fla.) · 2026
    Article
  2. Observational
  3. Article
  4. Article
  5. Article
4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

6 authors.

Danae G DotoloCambia Palliative Care Center of Excellence (D.G.D., E.L.N., R.A.E., N.K.), University of Washington, Harborview Medical Center, Seattle, Washington, USA; Department of Medicine, Division of Pulmonary (D.G.D., E.L.N., R.A.E.), Critical Care, & Sleep Medicine, University of Washington, Harborview Medical Center, Seattle, Washington, USA.
Christina Clare PytelDepartment of Anesthesiology and Pain Medicine (C.C.P., N.K.), University of Washington, Harborview Medical Center, Seattle, Washington, USA.
Elizabeth L NielsenCambia Palliative Care Center of Excellence (D.G.D., E.L.N., R.A.E., N.K.), University of Washington, Harborview Medical Center, Seattle, Washington, USA; Department of Medicine, Division of Pulmonary (D.G.D., E.L.N., R.A.E.), Critical Care, & Sleep Medicine, University of Washington, Harborview Medical Center, Seattle, Washington, USA.
Jennifer ImDepartment of Health Systems and Population Health (J.I.), University of Washington, Seattle, Washington, USA.
Ruth A EngelbergCambia Palliative Care Center of Excellence (D.G.D., E.L.N., R.A.E., N.K.), University of Washington, Harborview Medical Center, Seattle, Washington, USA; Department of Medicine, Division of Pulmonary (D.G.D., E.L.N., R.A.E.), Critical Care, & Sleep Medicine, University of Washington, Harborview Medical Center, Seattle, Washington, USA.
Nita KhandelwalCambia Palliative Care Center of Excellence (D.G.D., E.L.N., R.A.E., N.K.), University of Washington, Harborview Medical Center, Seattle, Washington, USA; Department of Anesthesiology and Pain Medicine (C.C.P., N.K.), University of Washington, Harborview Medical Center, Seattle, Washington, USA. Electronic address: khandel@uw.edu.

Funding

Identifying opportunities to improve shared decision-making about intensity of care for patients with Alzheimer's disease and related dementiasR01NR018161 · NINR · UNIVERSITY OF WASHINGTON · PI CREUTZFELDT, CLAIRE JOHANNA, ENGELBERG, RUTH ANN · 2018 to 2022
$3.7M
Improving patient- and family-centered outcomes and value of care for patients with chronic illness who develop acute respiratory failureK23HL144830 · NHLBI · UNIVERSITY OF WASHINGTON · PI KHANDELWAL, NITA · 2019 to 2022
$715k
NHLBI NIH HHS K23 HL144830NINR NIH HHS R01 NR018161
6 · The paper itself

Abstract

contextSeriously ill patients, such as those who experience critical illness, and their families experience a variety of poor outcomes, including financial hardship. However, little is known about the ways in which these seriously ill patients and their families experience financial hardship.

objectiveTo examine seriously ill patients' and families' experiences of financial hardship and perspectives on addressing these concerns during and after critical illness.

methodsWe conducted a thematic analysis of semi-structured interviews with seriously ill patients who recently experienced a critical care hospitalization (n=15) and family caregivers of these patients (n=18).

resultsOur analysis revealed three themes: 1) Prioritizing Survival and Recovery; 2) Living with Uncertainty-including experiences of prolonged uncertainty, navigating bureaucratic barriers, and long-term worries; and 3) Preferences for Financial Guidance. Our results suggest patients and families prioritize survival over financial hardship initially, and feelings of uncertainty about finances persist. However, patients and family caregivers are reluctant to have their physicians address financial hardship.

conclusionsOur findings suggest that the acute and time sensitive nature of treatment decisions in critical care settings provides a unique context for experiences of financial hardship. Additional research is needed to better understand these experiences and design context-sensitive interventions to mitigate financial hardship and associated poor patient- and family-centered outcomes.

Indexed as

CaregiversCritical IllnessFamilyFinancial StressQualitative ResearchAdultAgedAged, 80 and overCost of IllnessCritical CareFemaleHospitalizationHumansInterviews as TopicMaleMiddle Aged

Identifiers

PMID39147110
PMCPMC11471371

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.