ArticleNeurological research and practice2024
Perceived autonomy support in individuals with Parkinson's disease requiring emergency care: a cross-sectional pilot study.
Article in Neurological research and practice, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers, 1 of them a synthesis that pooled it.
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Who cites it
3 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Patient autonomy in advance care planning for Parkinson's disease: Systematic review with narrative synthesis.Palliative & supportive care · 2026Pooled it
- Translation, Validation and Exploration of the Chinese Version of the Health Care Climate Questionnaire Among Hypertensive Patients in Healthcare Settings.Patient preference and adherence · 2025Article
- Late feature fusion using neural network with voting classifier for Parkinson's disease detection.BMC medical informatics and decision making · 2024Article
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4 authors.
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Abstract
backgroundIndividuals with Parkinson's disease (PD) report a diminished perceived functional autonomy as their condition progresses. For those seeking emergency care, it is unknown whether the patient-physician relationship is instrumental in respecting patient autonomy. This study evaluated patient autonomy ideals in individuals with PD requiring emergency care and the perceived support for autonomy from emergency department physicians.
methodIndividuals with PD (n = 36, average age 78.1 years) were surveyed using the Ideal Patient Autonomy questionnaire (IPA) and the Health Care Climate Questionnaire (HCCQ). A multivariable regression analysis assessed whether patients' Hoehn and Yahr stage and IPA questionnaire results predicted HCCQ items.
resultsThe IPA questionnaire revealed that individuals with PD in need of emergency care emphasize the significance of medical expertise (IPA 'doctor should decide' theme 0.71) in decision-making and their desire to be fully informed about all potential risks (IPA 'obligatory risk information' theme 0.71). The average HCCQ values showed a decreasing trend across Hoehn and Yahr stages 1 to 5: 6.19, 6.03, 5.83, 5.80, and 5.23, respectively. HY scale values also influenced HCCQ items related to the physician's role.
conclusionIn our cohort, individuals with Parkinson's disease tend to rely on medical expertise for decision-making and prioritize complete risk information during emergency care. However, this autonomy support diminishes as functional disability levels increase.
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