Evidence map›Paper›PMID 39143588›Full record

ArticleBMC rheumatology2024

Benefits of a Juvenile Arthritis Support Program (JASP-1) for children recently diagnosed with Juvenile Idiopathic Arthritis and their parents.

Karina Mördrup, Johanna Granhagen Jungner, Eva Broström, Karin Palmblad, Cecilia Bartholdson

Erratum issued Registry-linked trialAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in BMC rheumatology, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. It is linked to trial NCT06284616 (Benefits of a Juvenile Arthritis Support Program), which is not on this map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT06284616 nacompletednot on this map

Benefits of a Juvenile Arthritis Support Program (JASP-1) for Children Recently Diagnosed With Juvenile Idiopathic Arthritis (JIA) and Their Parents

TypeinterventionalSponsorRegion StockholmRan2019 to 2023Enrolled82ConditionsJIA, Support Program, Patient Satisfaction, Patient Outcome AssessmentArmsJASP-1
3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

5 authors.

Karina MördrupDepartment of Women´s and Children´s Health, Karolinska Institutet Neuropediatric Unit, Karolinska vägen 37 A, Solna, 171 64, Sweden. karina.mordrup@ki.se.ORCID http://orcid.org/0009-0000-4652-9688
Johanna Granhagen JungnerDepartment of Women´s and Children´s Health, Karolinska Institutet Neuropediatric Unit, Karolinska vägen 37 A, Solna, 171 64, Sweden.ORCID http://orcid.org/0000-0003-4103-6539
Eva BroströmDepartment of Women´s and Children´s Health, Karolinska Institutet Neuropediatric Unit, Karolinska vägen 37 A, Solna, 171 64, Sweden.ORCID http://orcid.org/0000-0002-2967-8080
Karin PalmbladDepartment of Women´s and Children´s Health, Karolinska Institutet Neuropediatric Unit, Karolinska vägen 37 A, Solna, 171 64, Sweden.ORCID http://orcid.org/0000-0003-1197-5201
Cecilia BartholdsonDepartment of Women´s and Children´s Health, Karolinska Institutet Neuropediatric Unit, Karolinska vägen 37 A, Solna, 171 64, Sweden.ORCID http://orcid.org/0000-0001-5807-3438

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundMedical treatment for children with Juvenile Idiopathic Arthritis (JIA) has improved radically since the development of biological disease-modifying antirheumatic drugs. However, children suffer from pain and anxiety, and parents often experience loneliness and lack of support. Some parents reported that information provided at the time their child was diagnosed could be difficult to assimilate. Therefore, the aim of this study was to develop a Juvenile Arthritis Support Program (JASP-1) for children recently diagnosed with JIA and their parents. Moreover, the aim was to explore patients´ and parents´ experiences with JASP-1 and its potential impact on patients´ physical health.

methodsJASP-1 included seven patient- and family-centered clinical visit from time of diagnose and one year ahead. Data were collected from a study-specific questionnaire answered by children and their parents after participation in JASP-1 and from the pediatric rheumatology register. The study-specific questionnaire explored participants´ experience with the care they received during their first year with JIA. Registry and questionnaire data from the intervention (JASP-1) group was compared to a control group.

resultsThe analysis revealed that children and parents who completed JASP-1 were more satisfied with the care they had received during their first year with JIA than the control group. The results also showed that children who completed JASP-1 were assessed as having better overall health after 12 months, than children in the control group (JASP-1 = mean 4.33, 95% Confidence Interval (CI) 4.17 - 4.46), (Control = mean 3.68, 95% CI 3.29 - 4.06), (p = 0.002). Moreover, children in the JASP-1 group had less disease impact on daily life (JASP-1 = mean 0.15, 95% CI 0.07 - 0.24) (Control = mean 0.40, 95% CI 0.13 - 0.67), (p = 0.017) and less active joints than the control group (JASP-1 = mean 0.62, 95% CI 0.35 - 1.58), (Control = mean 0.87, 95% CI 0.18 - 1.56), (p = 0.054).

conclusionA support program like JASP-1 could be an effective way of not only supporting children newly diagnosed with JIA and their parents psychologically but may also increase children's overall physical health and improve quality of care within pediatric rheumatology.

trial registrationRetrospectively registered in ClinicalTrials.gov, the 13th of February with ID NCT06284616.

Indexed as

JIAPatient outcome assessmentPatient satisfactionSupport program

Identifiers

PMID39143588
PMCPMC11325655

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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.