Evidence map›Paper›PMID 39143564›Full record

ArticleBMC palliative care2024

The experience of hope in dyads living with advanced chronic illness in Portugal: a longitudinal mixed-methods study.

Filipa Baptista Peixoto Befecadu, Maria Gonçalves, Cláudia Fernandes, Carlos Laranjeira, Maria Dos Anjos Dixe, Ana Querido, Sophie Pautex, Philip J Larkin, Gora Da Rocha Rodrigues

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Article in BMC palliative care, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
  3. Article
  4. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Filipa Baptista Peixoto BefecaduPalliative and Supportive Care Service, Chaire Kristian Gerhard Jebsen of Palliative Care Nursing, Lausanne University Hospital and University of Lausanne, Lausanne, Switzerland. Filipa-Alexandra.Baptista-Peixoto@chuv.ch.
Maria GonçalvesPalliative Care Department, Hospital da Senhora da Oliveira, Creixomil, Guimarães, Portugal.
Cláudia FernandesPalliative Care Department, Hospital da Senhora da Oliveira, Creixomil, Guimarães, Portugal.
Carlos LaranjeiraSchool of Health Sciences, Polytechnic University of Leiria, Leiria, Portugal.
Maria Dos Anjos DixeSchool of Health Sciences, Polytechnic University of Leiria, Leiria, Portugal.
Ana QueridoSchool of Health Sciences, Polytechnic University of Leiria, Leiria, Portugal.
Sophie PautexDepartment of Readaptation and Geriatrics, Palliative Medicine Division, University Hospital Geneva and University of Geneva, Geneva, Switzerland.
Philip J LarkinPalliative and Supportive Care Service, Chaire Kristian Gerhard Jebsen of Palliative Care Nursing, Lausanne University Hospital and University of Lausanne, Lausanne, Switzerland.
Gora Da Rocha RodriguesGeneva School of Health Sciences, HES-SO University of Applied Sciences and Arts Western Switzerland, Geneva, Switzerland.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundHope is an important resource that helps patients and families thrive during difficult times. Although several studies have highlighted the importance of hope in different contexts, its specific manifestations in the realm of advanced chronic illness need further exploration. In this study, we sought to elucidate the intricate interplay between the construct of hope and the lived experience of advanced chronic illness within patient-caregiver dyads. Our objectives were (a) to explore the dyadic experience of hope as a changing dynamic over time for patients living with advanced chronic illness and their informal caregivers and (b) to evaluate variations of hope and symptom burden across time.

methodsWe conducted a longitudinal mixed-methods study with a convergent design between December 2020 and April 2021. Patients living with advanced chronic illness and informal caregivers participated as a dyad (n = 8). The Herth Hope Index scale was used to measure dyads' level of hope and the Edmonton Symptom Assessment System was used to measure patients' symptom burden. Descriptive statistics were undertaken. A thematic analysis as described by Braun and Clarke was conducted to analyze dyadic interview data. Dyads' experience of hope was described by using the six dimensions of hope in the Model of Hope of Dufault and Martocchio.

resultsDyadic scores of hope and patients' symptom burden were stable over time. The constructs of hope in dyads included "Living one day at the time," "Having inner force/strength," and "Maintaining good health." Changes in patterns of hope were captured for each dyad in their transition over time. Data converged for all dyads except one.

conclusionsThe findings of our study show a constant presence of hope even in the face of adversity. Healthcare professionals must find ways to promote hope in dyads of patients living with advanced chronic diseases. Nurses play a pivotal role; dyadic interviews should be promoted to create a safe space for both patients and informal caregivers in order to share experiences. More research is needed to address patients' and informal caregivers' hope in chronic illness because current hope-based interventions primarily target cancer diagnoses.

Indexed as

CaregiversHopeAdaptation, PsychologicalAdultAgedAged, 80 and overChronic DiseaseFemaleHumansLongitudinal StudiesMaleMiddle AgedPortugalQualitative ResearchChronic illnessDyadEnd-of-lifeHopeMixed methodsPalliative care

Identifiers

PMID39143564
PMCPMC11325565

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.