Evidence map›Paper›PMID 39142825›Full record

ArticleArchives of disease in childhood2024

Children and young people's preferences and needs when using health technology to self-manage a long-term condition: a scoping review.

Rosemary Jane Court, Veronica Swallow, Sarab El-Yousfi, Kara Gray-Burrows, Fiona Sotir, Gemma Wheeler, Ian Kellar, Jia Mang Lee, Robyn Mitchell, Wiktoria Mlynarczyk and 11 more

Abstract readScoping Review
In one paragraph

Article in Archives of disease in childhood, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

  1. Article
  2. Review
  3. Article
  4. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

21 authors.

Rosemary Jane CourtNursing and Midwifery, Sheffield Hallam University College of Health Wellbeing and Life Sciences, Sheffield, UK r.court@shu.ac.uk.ORCID 0009-0001-7721-8855
Veronica SwallowCollege of Health, Wellbeing and Life Sciences, Sheffield Hallam University, Sheffield, UK.
Sarab El-YousfiSchool of Clinical Dentistry, The University of Sheffield, Sheffield, UK.
Kara Gray-BurrowsSchool of Dentistry, University of Leeds Faculty of Medicine and Health, Leeds, UK.ORCID 0000-0002-1550-5066
Fiona SotirSchool of Clinical Dentistry, The University of Sheffield, Sheffield, UK.
Gemma WheelerNIHR MedTech & In Vitro Diagnostics Co-operative Sheffield Children's Hospital, NIHR Sheffield CRF, Sheffield, UK.
Ian KellarDepartment of Psychology, The University of Sheffield, Sheffield, UK.ORCID 0000-0003-1608-5216
Jia Mang LeeHull York Medical School, University of York, York, UK.
Robyn MitchellPatient and Public Involvement (PPI) Group Member, University of York, York, UK.
Wiktoria MlynarczykPatient and Public Involvement (PPI) Group Member, University of York, York, UK.
Arnav RamavathPatient and Public Involvement (PPI) Group Member, University of York, York, UK.
Paul DimitriNIHR Children and Young People MedTech Cooperative, Sheffield Children's Hospital NHS Foundation Trust, Sheffield, UK.ORCID 0000-0001-7625-6713
Bob PhillipsLeeds Children's Hospital, Leeds, UK.
Lucy ProdgersSchool of Psychology, University of Leeds, Leeds, UK.ORCID 0000-0002-6425-7839
Madeleine PownallSchool of Psychology, University of Leeds, Leeds, UK.
Marcin KowalczykMedical School, The University of Sheffield, Sheffield, UK.
Jacob BranchflowerNIHR MedTech & In Vitro Diagnostics Co-operative Sheffield Children's Hospital, NIHR Sheffield CRF, Sheffield, UK.
Lauren PowellSchool of Education, The University of Sheffield, Sheffield, UK.
Sadiq BhanbhroHealth Research Institute, Sheffield Hallam University, Sheffield, UK.
Anna WeighallSchool of Education, The University of Sheffield, Sheffield, UK.
Jacqueline Martin-KerrySchool of Healthcare, University of Leicester, Leicester, UK.ORCID 0000-0002-9299-1360

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundThe use of patient-facing health technologies to manage long-term conditions (LTCs) is increasing; however, children and young people (CYP) may have preferences about health technologies which they interact or engage with, that influence their decision to use these technologies.

aimsTo identify CYP's reported preferences about health technologies to self-manage LTCs.

methodsWe undertook a scoping review, searching MEDLINE, PsycINFO and CINAHL in July 2021. Searches were limited to papers published between January 2015 and July 2021. We included any health technologies used to manage physical and mental LTCs. Qualitative content analysis of study data was undertaken to categorise data into themes and quantitative data were described and visually represented. We engaged CYP with LTCs to support the review design, interpretation of findings and development of recommendations.

results161 journal articles were included, describing preferences of CYP. Most included studies were undertaken in high-income countries. CYP's main preferences and needs were: design and functionality; privacy and sharing; customisation and personalisation of the technology; and interaction options within the technology.

conclusionsThis review highlights important preferences and needs that CYP may have before using technologies to self-manage their LTC. These should be considered when developing technology for this population. Future research should involve CYP throughout the development of the technologies, from identifying their unmet needs through to final design, development, evaluation and implementation of the intervention.

Indexed as

Patient PreferenceAdolescentBiomedical TechnologyChildChronic DiseaseHumansSelf-ManagementAdolescent HealthChild HealthInformation TechnologyPaediatricsTechnology

Identifiers

PMID39142825
PMCPMC11503065

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.