ArticleAutism in adulthood2024
Autistic Co-Led Community Priorities for Future Autism Research in Aotearoa New Zealand.
Article in Autism in adulthood, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
6 citing papers in PubMed.
- A Qualitative Study Exploring the Acceptability of Taking Part in a Large Multicentre RCT of Medication for Anxiety in Autistic Adults (the STRATA Trial).Autism : the international journal of research and practice · 2026Article
- Advancing Healthcare Provision to Autistic Clients: A Systematic Review of Autism Focused Digitally Delivered Professional Education Programs (DDPE) for the Health Workforce.Journal of autism and developmental disorders · 2026Article
- Aligning XR Research with Autistic Priorities and Lived Experiences: Insights from the Project PHoENIX Study.Journal of autism and developmental disorders · 2025Article
- Consensus on high-priority outcomes to be used in the evaluation of services for autistic adults: Results from a "CBPR-Nested Delphi Process".Autism : the international journal of research and practice · 2025Article
- 'Nothing About Us, Without Us': Research Priorities for Autistic Girls, Women and Gender Diverse People in Australia.Journal of autism and developmental disorders · 2025Article
- A portfolio analysis of autism research funding in Aotearoa New Zealand 2007-2021.Autism : the international journal of research and practice · 2023Article
Corrections and comments
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Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Background: Previous studies of community priorities for autism research have been limited by low representation of autistic people and thus a bias toward the views of families and professionals. We aimed to determine the first community-led priorities for autism research in Aotearoa New Zealand (NZ). Methods: Autistic people were essential partners in the project, from inception and design through to methods and outputs. We gathered the views of the autistic and autism communities (including family, practitioners, and researchers) through focus groups ( Results: The findings across the focus groups and survey highlighted the importance of research that centralizes the experiences and needs of autistic people, particularly of autistic New Zealanders, including culturally specific research for Māori and Pacific peoples. All five priority topics for autistic adults were also priorities for at least one other group: (1) Conclusions: We discuss the advantages of autistic involvement in research, and how these community priorities can inform future research and policy in NZ.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.