Evidence map›Paper›PMID 39136378›Full record

ArticleDisability and rehabilitation2025

Centering the person in development of a model of care for people with Parkinson's disease: a qualitative study.

Christine M Clarkin, D Grace Smith, Ellen L McGough, Leslie A Mahler

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Disability and rehabilitation, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Christine M ClarkinPhysical Therapy Department, University of Rhode Island, Kingston, RI, USA.
D Grace SmithAdvance Clinical and Translational Research, Division of Biology and Medicine, Brown University, Providence, RI, USA.
Ellen L McGoughPhysical Therapy Department, University of Rhode Island, Kingston, RI, USA.
Leslie A MahlerInterdisciplinary Neuroscience Program, University of Rhode Island, Kingston, RI, USA.

Funding

Tracking and Evaluation CoreU54GM115677 · NIGMS · BROWN UNIVERSITY · PI ROUNDS, SHARON IRENE SMITH · 2016 to 2025
$45.0M
NIGMS NIH HHS U54 GM115677
6 · The paper itself

Abstract

purposeObtain the perspectives of people with Parkinson's disease (PwPD) and their care partners (CPs) about their lived experiences with Parkinson's Disease (PD) to characterize a new model of care that meets their biopsychosocial and healthcare needs.

methodsThis phenomenological study included semi-structured focus groups exploring PD diagnosis/care experiences and conceptualizations of an ideal model of care among PwPD and CPs. Data were analyzed

resultsTwenty-five individuals (PwPD,

conclusionsParticipants emphasized that, beyond clinical interactions and diagnosis-centered conversations, they wished for holistic healthcare that acknowledged the larger picture of their life with PD. An ideal model of care for PwPD should aim to be person centered, maximize collaboration and coordination across multiple disciplines, provide access to a wide range of information and resources, refer to community centers and support groups, and be designed with ease of navigation in mind.

Indexed as

CaregiversParkinson DiseasePatient-Centered CareAgedAged, 80 and overFemaleFocus GroupsHumansMaleMiddle AgedQualitative Researchcoordinated carefocus groupsmodel of careParkinson’s diseaseperson-centeredqualitative methodsthematic analysis

Identifiers

PMID39136378
PMCPMC11822043

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.