Evidence map›Paper›PMID 39135444›Full record

ArticleJournal of the American Medical Informatics Association : JAMIA2024

Designing the Australian Cancer Atlas: visualizing geostatistical model uncertainty for multiple audiences.

Sarah Goodwin, Thom Saunders, Joanne Aitken, Peter Baade, Upeksha Chandrasiri, Dianne Cook, Susanna Cramb, Earl Duncan, Stephanie Kobakian, Jessie Roberts and 1 more

Abstract read
In one paragraph

Article in Journal of the American Medical Informatics Association : JAMIA, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Reflections on interactive visualization of electronic health records: past, present, future.Journal of the American Medical Informatics Association : JAMIA · 2024
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

Sarah GoodwinHuman-Centred Computing, Faculty of Information Technology, Monash University, Clayton, VIC 3800, Australia.ORCID 0000-0001-8894-8282
Thom SaundersViseR, Queensland University of Technology (QUT), Brisbane, QLD 4000, Australia.
Joanne AitkenViertel Cancer Research Centre, Cancer Council Queensland (CCQ), Fortitude Valley, QLD 4006, Australia.ORCID 0000-0001-6859-2186
Peter BaadeViertel Cancer Research Centre, Cancer Council Queensland (CCQ), Fortitude Valley, QLD 4006, Australia.ORCID 0000-0001-8576-8868
Upeksha ChandrasiriViertel Cancer Research Centre, Cancer Council Queensland (CCQ), Fortitude Valley, QLD 4006, Australia.
Dianne CookDepartment of Econometrics and Business Statistics, Monash University, Clayton, VIC 3800, Australia.ORCID 0000-0002-3813-7155
Susanna CrambAustralian Centre for Health Services Innovation, School of Public Health & Social Work, Queensland University of Technology (QUT), Kelvin Grove, QLD 4059, Australia.ORCID 0000-0001-9041-9531
Earl DuncanHealth Workforce Data Intelligence Unit, Australian Government Department of Health and Aged Care, Philip, ACT 2606, Australia.
Stephanie KobakianSchool of Mathematical Sciences, Queensland University of Technology (QUT), Brisbane, QLD 4000, Australia.
Jessie RobertsSchool of Mathematical Sciences, Queensland University of Technology (QUT), Brisbane, QLD 4000, Australia.
Kerrie MengersenSchool of Mathematical Sciences, Queensland University of Technology (QUT), Brisbane, QLD 4000, Australia.ORCID 0000-0001-8625-9168

Funding

Australian Institute of Health and WelfareAustralian Institute of Health and Welfare and Queensland University of TechnologyCancer Council QueenslandCooperative Research Centre for Spatial Information PA 4.405Queensland University of Technology
6 · The paper itself

Abstract

objectiveThe Australian Cancer Atlas (ACA) aims to provide small-area estimates of cancer incidence and survival in Australia to help identify and address geographical health disparities. We report on the 21-month user-centered design study to visualize the data, in particular, the visualization of the estimate uncertainty for multiple audiences. MATERIALS AND

methodsThe preliminary phases included a scoping study, literature review, and target audience focus groups. Several methods were used to reach the wide target audience. The design and development stage included digital prototyping in parallel with Bayesian model development. Feedback was sought from multiple workshops, audience focus groups, and regular meetings throughout with an expert external advisory group.

resultsThe initial scoping identified 4 target audience groups: the general public, researchers, health practitioners, and policy makers. These target groups were consulted throughout the project to ensure the developed model and uncertainty visualizations were effective for communication. In this paper, we detail ACA features and design iterations, including the 3 complementary ways in which uncertainty is communicated: the wave plot, the v-plot, and color transparency. DISCUSSION: We reflect on the methods, design iterations, decision-making process, and document lessons learned for future atlases.

conclusionThe ACA has been hugely successful since launching in 2018. It has received over 62 000 individual users from over 100 countries and across all target audiences. It has been replicated in other countries and the second version of the ACA was launched in May 2024. This paper provides rich documentation for future projects.

Indexed as

Bayes TheoremNeoplasmsAtlases as TopicAustraliaData VisualizationHumansIncidenceModels, StatisticalUncertaintycancer atlasdesign studygeostatistical modelgeovisualizationuncertainty

Identifiers

PMID39135444
PMCPMC11491590

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.