Evidence map›Paper›PMID 39131692›Full record

ArticlePatient preference and adherence2024

"I Don't Feel Judged, I Don't Feel Less of a Person" - Engaged and Supportive Providers in the HIV Care Experiences of Black Sexual Minority Men Living with HIV.

Kirstin Kielhold, Erik D Storholm, Hannah E Reynolds, Wilson Vincent, Daniel E Siconolfi, Susan M Kegeles, Lance Pollack, Chadwick K Campbell

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Patient preference and adherence, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
  3. Article
  4. Article
  5. Review
  6. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Kirstin KielholdHerbert Wertheim School of Public Health and Human Longevity Science, University of California San Diego, La Jolla, CA, USA.
Erik D StorholmSchool of Public Health, San Diego State University, San Diego, CA, USA.
Hannah E ReynoldsSchool of Public Health, San Diego State University, San Diego, CA, USA.ORCID 0009-0009-6142-066X
Wilson VincentDepartment of Psychology and Neuroscience, Temple University, Philadelphia, PA, USA.
Daniel E SiconolfiRAND Corporation, Pittsburgh, PA, USA.
Susan M KegelesDivision of Prevention Science, Department of Medicine, University of California San Francisco, San Francisco, CA, USA.
Lance PollackDivision of Prevention Science, Department of Medicine, University of California San Francisco, San Francisco, CA, USA.
Chadwick K CampbellHerbert Wertheim School of Public Health and Human Longevity Science, University of California San Diego, La Jolla, CA, USA.

Funding

VirologyP30AI036214 · NIAID · UNIVERSITY OF CALIFORNIA, SAN DIEGO · PI SUSAN JANET LITTLE · 1994 to 2026
$78.4M
Research Supplement to Promote Diversity in Health-Related ResearchR01MH102171 · NIMH · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI KEGELES, SUSAN M. · 2013 to 2017
$3.3M
An Intervention to Increase Retention in Care among HIV-Positive Black MenK23MH111402 · NIMH · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI VINCENT, WILSON · 2017 to 2020
$1.0M
Investigating the Impact of Substance Use, Intimate Partner Violence, and COVID-19 on HIV Care Engagement among Young Black Sexual Minority Men with HIV in the US SouthR21DA053164 · NIDA · SAN DIEGO STATE UNIVERSITY · PI STORHOLM, ERIK D. · 2021 to 2022
$477k
NIAID NIH HHS P30 AI036214NIDA NIH HHS R21 DA053164NIMH NIH HHS K23 MH111402NIMH NIH HHS R01 MH102171
6 · The paper itself

Abstract

Background: Black sexual minority men (BSMM) in the Southern region of the United States experience a disproportionate burden of HIV. Research findings suggest that having supportive patient-provider relationships are critical for sustained HIV care engagement. The present study explores the role of supportive healthcare providers in the care engagement among BSMM living with HIV (BSMM+) in the US South. Methods: Semi-structured qualitative interviews were conducted with BSMM+ in Texas (n=27) to explore perceived barriers and facilitators of sustained care engagement. Interviews lasted 60 minutes on average, were transcribed, coded, and analyzed using applied thematic analysis. Findings: Participants described how important having relationships with engaged and supportive HIV care and service providers is to sustained engagement in care and positive HIV clinical outcomes. Supportive providers were characterized as non-judgmental, meeting patients' needs, and making patients feel "seen". Less supportive providers were described as making their patients "feel like a number" and having lack of follow through on proposed support and resources. Supportive providers were associated with increased care engagement of their patients while less supportive providers often led to patients switching providers, losing touch with services, and getting off track with their care. Discussion: We found that among BSMM+ an important facilitator of sustained care engagement was having positive, affirming, and knowledgeable healthcare providers, while negative and dismissive experiences with providers was a notable barrier to care engagement. This work highlights the need for a scale up of comprehensive, ongoing trainings in patient-centered and person-first communication for providers. Further, manageable provider caseloads can facilitate more thorough patient interactions where tailored HIV care and education can be provided in a safe and non-judgmental environment.

Indexed as

black sexual minority mencare engagementHIVpatient-provider relationship

Identifiers

PMID39131692
PMCPMC11313489

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.