Evidence map›Paper›PMID 39121236›Full record

ArticleDementia (London, England)2025

People with dementia and family carers are welcoming of a model of dementia palliative care, but sceptical of its implementation.

Siobhan Fox, Mary Faherty, Jonathan Drennan, Suzanne Guerin, W George Kernohan, Aileen Murphy, Suzanne Timmons

Abstract read
In one paragraph

Article in Dementia (London, England), 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Siobhan FoxCentre for Gerontology and Rehabilitation, University College Cork, Ireland.ORCID 0000-0002-6854-8975
Mary FahertyCentre for Gerontology and Rehabilitation, School of Medicine, University College Cork, Ireland.ORCID 0009-0009-0812-9128
Jonathan DrennanSchool of Nursing and Midwifery, University College Cork, University College Dublin, Ireland.ORCID 0000-0001-7365-4345
Suzanne GuerinSchool of Psychology, University College Dublin, Ireland.ORCID 0000-0002-6744-7590
W George KernohanInstitute of Nursing and Health Research, Ulster University, Ireland.ORCID 0000-0002-1309-446X
Aileen MurphyDepartment of Economics, University College Cork, Ireland.ORCID 0000-0003-3062-0692
Suzanne TimmonsCentre for Gerontology and Rehabilitation, School of Medicine, University College Cork, Ireland.ORCID 0000-0001-7790-9552

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionA palliative care approach can improve quality-of-life for people with dementia. It is the preference of many people with dementia to remain living at home until death, with the appropriate care. To develop a successful model for dementia palliative care in the community, it is essential to assimilate the perspectives and experiences of those affected. The guiding research question for this study was: What are people with dementia and family carers' views on a model for dementia palliative care?.

methodsFocus groups (

resultsThree main themes were identified: living and dying well with dementia; reducing carer burden to fulfil the wish for home care; and lack of faith in the healthcare system. One statement which summarised the analysis was: "Dementia palliative care is a dream, but not a reality." This reflected participants' repeated "wish" for this "ideal" model of care, but simultaneous scepticism regarding its implementation, based on their prior experiences of healthcare services.

conclusionAll participants were welcoming of the proposed model for dementia palliative care and were generally positive about palliative care as a concept relating to dementia. There was consensus that the model would allow people to live and die well with dementia, and reducing the carer burden would fulfil the wish to remain at home. However systemic changes in the healthcare system will be needed to facilitate a truly person-centred, holistic, individualised and flexible model of care.

Indexed as

CaregiversDementiaFocus GroupsPalliative CareAgedAged, 80 and overFemaleHumansMaleMiddle AgedQualitative ResearchQuality of Lifeadvance care planningcommunity caredementiaend-of-lifehome caremodelpalliative care

Identifiers

PMID39121236
PMCPMC11667952

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.