Evidence map›Paper›PMID 39119999›Full record

ArticleAge and ageing2024

Experiences of family carers supporting older people within the last year of life in rural and remote areas in the UK.

Caroline Mogan, Nathan Davies, Karen Harrison-Dening, Mari Lloyd-Williams

Abstract read
In one paragraph

Article in Age and ageing, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 2 syntheses or guidelines pooled it.

  1. Pooled it
  2. Pooled it
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Caroline MoganLiverpool John Moores University, Faculty of Health, Tithebarn Street, Liverpool L2 2ER, UK.ORCID 0000-0002-4485-3633
Nathan DaviesResearch Department of Primary Care and Population Health, University College London, Royal Free Campus, Rowland Hill Street, London NW3 2PF, UK.ORCID 0000-0001-7757-5353
Karen Harrison-DeningDementia UK, Research & Publications, One Aldgate, London EC3N 1RE, UK.
Mari Lloyd-WilliamsLiverpool John Moores University, Faculty of Health, Tithebarn Street, Liverpool L2 2ER, UK.

Funding

National Institute for Health and Care Research NIHR135350
6 · The paper itself

Abstract

backgroundIn the UK, a large proportion of older adults live in rural/remote locations. More people are dying at home and require care from their families. Little is known about the experiences of family carers of older people in rural/remote areas in the last year of life.

aimTo explore the experiences of current and bereaved family carers who support/ed an older person in a rural area in the UK towards the end-of-life.

designQualitative methodology using semi-structured interviews and reflexive thematic analysis methods.

methodInterviews were conducted with family carers of rural/remote-dwelling older people in the last year of life. Participants were recruited through national support services, third sector organisations and social media.

resultsInterviews were conducted with 20 family carers. Most were female (n = 17) and aged 52-80 years. Family carers experienced difficulties in accessing health and social care in rural/remote areas due to workforce and skills shortages within their regions. The wider community helped with practical tasks and made carers feel less alone. Community-based services, such as day care, helped to provide respite for carers and promoted meaningful activity and social inclusion for older people. Although internet access was problematic, family carers gained support remotely via social media and telehealth services.

conclusionFamily carers of older people in the last year of life in rural/remote areas value support from the wider community. Further work is required to understand how Public Health approaches to palliative care and workforce distribution can support rural/remote carers and older people.

Indexed as

CaregiversTerminal CareAgedAged, 80 and overFemaleHumansInterviews as TopicMaleMiddle AgedRural Health ServicesRural PopulationUnited Kingdomend-of-lifefamily carersolder peoplepalliative carequalitative researchrural healthcare

Identifiers

PMID39119999
PMCPMC11310774

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.