Evidence map›Paper›PMID 39110962›Full record

ArticleJMIR research protocols2024

Development and Evaluation of a Web-Based Platform for Personalized Educational and Professional Assistance for Dementia Caregivers: Proposal for a Mixed Methods Study.

Logan DuBose, Qiping Fan, Louis Fisher, Minh-Nguyet Hoang, Diana Salha, Shinduk Lee, Marcia G Ory, Tokunbo Falohun

Abstract read
In one paragraph

Article in JMIR research protocols, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Logan DuBoseSchool of Public Health, Texas A&M University, College Station, TX, United States.ORCID 0009-0005-2740-9062
Qiping FanDepartment of Public Health Sciences, Clemson University, Clemson, SC, United States.ORCID 0000-0001-9168-7845
Louis FisherDepartment of Public Health Sciences, Clemson University, Clemson, SC, United States.ORCID 0009-0000-8099-0371
Minh-Nguyet HoangSchool of Medicine, Texas A&M University, College Station, TX, United States.ORCID 0009-0006-6513-0852
Diana SalhaSchool of Public Health, Texas A&M University, College Station, TX, United States.ORCID 0009-0003-2113-8076
Shinduk LeeCollege of Nursing, University of Utah, Salt Lake City, UT, United States.ORCID 0000-0003-1336-819X
Marcia G OrySchool of Public Health, Texas A&M University, College Station, TX, United States.ORCID 0000-0001-8036-2383
Tokunbo FalohunOlera lnc, Houston, TX, United States.ORCID 0000-0003-2723-2760

Funding

Olera - Online Platform to Increase Access to Personalized Educational and Professional Assistance for AD/ADRD CaregiversR44AG074116 · NIA · OLERA INC. · PI Tokunbo Falohun · 2021 to 2026
$5.3M
NIA NIH HHS R44 AG074116
6 · The paper itself

Abstract

backgroundAlzheimer disease (AD) and AD-related dementia are prevalent concerns for aging populations. With a growing older adult population living in the United States, the number of people living with dementia is expected to grow, posing significant challenges for informal caregivers. The mental and physical burdens associated with caregiving highlight the importance of developing novel and effective resources to support caregivers. However, technology solutions designed to address their needs often face low adoption rates due to usability issues and a lack of contextual relevance. This study focuses on developing a web-based platform providing financial and legal planning information and education for dementia caregivers and evaluating the platform's usability and adoptability.

objectiveThe goal of this project is to create a web-based platform that connects caregivers with personalized and easily accessible resources. This project involves industrial, academic, and community partners and focuses on two primary aims: (1) developing a digital platform using a Dementia Care Personalization Algorithm and assessing feasibility in a pilot group of caregivers, and (2) evaluating the acceptability and usability of the digital platform across different racial or ethnic populations. This work will aid in the development of technology-based interventions to reduce caregiver burden.

methodsThe phase I study follows an iterative Design Thinking approach, involving at least 25 dementia caregivers as a user feedback panel to assess the platform's functionality, aesthetics, information, and overall quality using the adapted Mobile Application Rating Scale. Phase II is a usability study with 300 dementia caregivers in Texas (100 African American, 100 Hispanic or Latinx, and 100 non-Hispanic White). Participants will use the digital platform for about 4 weeks and evaluate its usefulness and ease of use through the Technology Acceptance Survey.

resultsThe study received funding from the National Institute on Aging on September 3, 2021. Ethical approval for phase I was obtained from the Texas A&M University Institutional Review Board on December 8, 2021, with data collection starting on January 1, 2022, and concluding on May 31, 2022. Phase I results were published on September 5, 2023, and April 17, 2024, respectively. On June 21, 2023, ethical approval for human subjects for phase II was granted, and participant recruitment began on July 1, 2023.

conclusionsUpon completing these aims, we expect to deliver a widely accessible digital platform tailored to assist dementia caregivers with financial and legal challenges by connecting them to personalized, contextually relevant information and resources in Texas. If successful, we plan to work with caregiving organizations to scale and sustain the platform, addressing the needs of the growing population living with dementia. INTERNATIONAL REGISTERED REPORT IDENTIFIER (IRRID): DERR1-10.2196/64127.

Indexed as

CaregiversDementiaAgedAlzheimer DiseaseFemaleHumansInternetMaleUnited StatesAlzheimer diseasecaregiver supportdementia caregiversdigital platformevaluationfinancial planninglegal planningolder adultsusability study

Identifiers

PMID39110962
PMCPMC11339571

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.