Evidence map›Paper›PMID 39107734›Full record

ArticleBMC palliative care2024

A 15-year experience in pediatric palliative care: a retrospective hospital-based study.

Mirella Schiavon, Pierina Lazzarin, Caterina Agosto, Francesca Rusalen, Antuan Divisic, Anna Zanin, Anna Mercante, Valentina Mirisola, Simonetta Papa, Luca Giacomelli and 1 more

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In one paragraph

Article in BMC palliative care, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed.

  1. Observational
  2. Review
  3. Review
  4. Review
  5. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

Mirella SchiavonPaediatric Palliative Care Pain Service Department of Women's and Children's Health, University of Padua, Padua, Italy.
Pierina LazzarinPaediatric Palliative Care Pain Service Department of Women's and Children's Health, University of Padua, Padua, Italy.
Caterina AgostoPaediatric Palliative Care Pain Service Department of Women's and Children's Health, University of Padua, Padua, Italy.
Francesca RusalenPaediatric Palliative Care Pain Service Department of Women's and Children's Health, University of Padua, Padua, Italy.
Antuan DivisicPaediatric Palliative Care Pain Service Department of Women's and Children's Health, University of Padua, Padua, Italy.
Anna ZaninPaediatric Palliative Care Pain Service Department of Women's and Children's Health, University of Padua, Padua, Italy.
Anna MercanteDepartment of Biomedical and Neuromotor Sciences, University of Bologna, Bologna, Italy.
Valentina MirisolaPolistudium SRL, Milan, Italy.
Simonetta PapaPolistudium SRL, Milan, Italy.
Luca GiacomelliPolistudium SRL, Milan, Italy.
Franca BeniniPaediatric Palliative Care Pain Service Department of Women's and Children's Health, University of Padua, Padua, Italy. franca.benini@aopd.veneto.it.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundThe current Italian scenario of pediatric palliative care (PPC) services is characterized by inadequate coverage of the territory. Therefore, it is important to improve the referral of patients to the most appropriate setting (community care, general PPC, or specialized PPC) and to improve the delivery of PPC care.

methodsAiming at obtaining information about the referrals to the Padua Pediatric Hospice that could help estimate the investments needed to improve the provision of care, a retrospective analysis has been carried out. The rate of proper referral and discharge, the number of patients followed at the hospice, the mortality rate, and the length of follow-up were analyzed, and, when possible, data were stratified by oncological and non-oncological diseases.

resultsThe analysis showed that of the 870 patients referred to the Padua Pediatric Hospice between 2008 and 2022, 76% were affected by non-oncological conditions. 82% of patients referred were taken in charge and most of the remaining patients have been inappropriately referred. The analysis showed a growing number of total referrals, which increased by 195% from 2008 to 2022. An increase in proper referrals and referrals of non-oncological patients was observed alongside a decrease in oncological patient referrals and a trend toward a decrease in discharge rates. A decreased mortality was observed in patients with non-oncological conditions, with only 6% of deceased patients in 2022. Moreover, a longer survival with a median follow-up length of 43 months was observed among patients with non-oncological conditions who were followed up at the Padua Pediatric Hospice for more than 12 months. Conversely, the short survival rate observed for oncological patients suggests that those patients should have been referred to PPC earlier to benefit from palliative care for longer periods.

conclusionsConsidering these data, it is expected that the number of patients needing PPC services will steadily increase in the next years. Hence, there is a need to invest resources to provide the best care delivery model encompassing specific pathways for the transition into adulthood, the establishment of networks within all the Italian regions, and an efficient referral to the more suitable setting of care.

Indexed as

Palliative CareReferral and ConsultationAdolescentChildChild, PreschoolFemaleHumansInfantInfant, NewbornItalyMalePediatricsRetrospective StudiesFollow-upMortalityPediatric palliative care

Identifiers

PMID39107734
PMCPMC11301942

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.