Evidence map›Paper›PMID 39103976›Full record

ArticleBJPsych open2024

Pre-implementation planning for a new personalised, dementia post-diagnostic support intervention: exploring the perspective of professional stakeholders.

Ayesha Dar, Jessica Budgett, Sedigheh Zabihi, Ellenyd Whitfield, Iain Lang, Penny Rapaport, Bronte Heath, Margaret Ogden, Rosemary Phillips, Alexandra Burton and 7 more

Abstract read
In one paragraph

Article in BJPsych open, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

17 authors.

Ayesha DarDivision of Psychiatry, University College London, London, UK.
Jessica BudgettCentre for Psychiatry and Mental Health, Wolfson Institute of Population Health, Queen Mary University London, London, UK.
Sedigheh ZabihiCentre for Psychiatry and Mental Health, Wolfson Institute of Population Health, Queen Mary University London, London, UK.
Ellenyd WhitfieldCentre for Psychiatry and Mental Health, Wolfson Institute of Population Health, Queen Mary University London, London, UK.
Iain LangUniversity of Exeter, Exeter, UK.
Penny RapaportDivision of Psychiatry, University College London, London, UK.
Bronte HeathAlzheimer's Society, London, UK.
Margaret OgdenAlzheimer's Society, London, UK.
Rosemary PhillipsAlzheimer's Society, London, UK.
Alexandra BurtonDivision of Psychiatry, University College London, London, UK.ORCID https://orcid.org/0000-0002-4433-3902
Laurie ButlerAnglia Ruskin University, Cambridge, UK.
Danielle WymanAnglia Ruskin University, Cambridge, UK.ORCID https://orcid.org/0000-0002-4067-0151
Juanita HoeUniversity of West London, London, UK.ORCID https://orcid.org/0000-0003-4647-8950
Jill ManthorpeThe Policy Institute at King's, King's College London, London, UK.
Sarah Morgan-TrimmerUniversity of Exeter, Exeter, UK.
Freya KoutsoubelisDivision of Psychiatry, University College London, London, UK.
Claudia CooperCentre for Psychiatry and Mental Health, Wolfson Institute of Population Health, Queen Mary University London, London, UK.ORCID https://orcid.org/0000-0002-2777-7616

Funding

Alzheimer's Society 330
6 · The paper itself

Abstract

backgroundOnly a third of people with dementia receive a diagnosis and post-diagnostic support. An eight session, manualised, modular post-diagnostic support system (New Interventions for Independence in Dementia Study (NIDUS) - family), delivered remotely by non-clinical facilitators is the first scalable intervention to improve personalised goal attainment for people with dementia. It could significantly improve care quality.

aimsWe aimed to explore system readiness for NIDUS-family, a scalable, personalised post-diagnostic support intervention.

methodWe conducted semi-structured interviews with professionals from dementia care services; the Consolidated Framework for Implementation Research guided interviews and their thematic analysis.

resultsFrom 2022 to 2023, we interviewed a purposive sample of 21 professionals from seven English National Health Service, health and social care services. We identified three themes: (1) potential value of a personalised intervention - interviewees perceived the capacity for choice and supporting person-centred care as relative advantages over existing resources; (2) compatibility and deliverability with existing systems - the NIDUS-family intervention model was perceived as compatible with service goals and clients' needs, but current service infrastructures, financing and commissioning briefs constraining resources to those at greatest need were seen as barriers to providing universal, post-diagnostic care; (3) fit with current workforce skills - the intervention model aligned well with staff development plans; delivery by non-clinically qualified staff was considered an advantage over current care options.

conclusionsTranslating evidence for scalable and effective post-diagnostic care into practice will support national policies to widen access to support and upskill support workers, but requires a greater focus on prevention in commissioning briefs and resource planning.

Indexed as

Dementiaintegrated caremanualised interventionspreventionworkforce

Identifiers

PMID39103976
PMCPMC11698165

What OpenQuestion holds

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.