SynthesisHealth expectations : an international journal of public participation in health care and health policy2024
A systematic review of theories, models and frameworks used for youth engagement in health research.
Synthesis in Health expectations : an international journal of public participation in health care and health policy, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 3 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
16 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- The co-creation of eating and wellbeing guidelines with rangatahi (young people) in Aotearoa New Zealand.Public health nutrition · 2026Guideline
- Involving adolescents in evidence syntheses: an umbrella review.Systematic reviews · 2025Pooled it
- A systematic review of theories, models and frameworks used for youth engagement in health research.Health expectations : an international journal of public participation in health care and health policy · 2024Pooled it
- From Youth Advisory Boards to subject matter research consultants: transforming youth participation in research advising and practice.Research involvement and engagement · 2026Article
- Building the Capacity of Adolescents as Researchers: The Co-Creation of the Health Hive Online Course.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- How Are Adolescents Participating in the Transformation of Healthy Food Environments? A Scoping Review of Empirical Research.Obesity reviews : an official journal of the International Association for the Study of Obesity · 2026Article
- Frameworks Used to Engage Postsecondary Students in Campus Mental Health Research: A Scoping Review.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Youth patient and public involvement in health research in the Netherlands: experiences from a multi-stakeholder interview study.Research involvement and engagement · 2025Article
- Advancing adolescent health promotion in the digital era.Health promotion international · 2025Review
- Digital Information Exchange Between the Public and Researchers in Health Studies: Scoping Review.Journal of medical Internet research · 2025Article
- Steps Toward Justice: a model for equitable involvement of young people in mental health promotion.Frontiers in public health · 2025Article
- Editorial: Moving beyond tokenism: toward sustainable youth engagement to improve the implementation of public health programs and interventions.Frontiers in public health · 2025Article
- From 'publish or perish' to 'publish with purpose': perspectives from young adults with lived and living experience on transforming academic publishing in patient-oriented research.Research involvement and engagement · 2024Article
- An Application of Evidence-Based Approaches to Engage Young People in the Design of a Global Mental Health Databank.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Experiences from youth advisors in chronic disease prevention research.Research involvement and engagement · 2024Article
- Navigating Challenges with IRB Review for Community-Engaged Research with Transgender Youth in the United States.Ethics & human researchArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors.
Funding
Abstract
backgroundYouth engagement in research, wherein youth are involved in the research beyond mere participation as human subjects, is growing and becoming more popular as an approach to research. However, systematic and deliberate theory-building has been limited. We conducted a systematic review to identify and synthesize theories, models and frameworks that have been applied in the engagement of youth in health research, including mental health.
methodsSix academic databases (MEDLINE, PsycINFO, Embase, PubMed, Scopus, CINAHL) and the grey literature were searched for relevant studies. Citation tracking was conducted through ancestry and descendancy searches. The final search was completed on 7 February 2023. Findings were summarized in a narrative synthesis informed by principles of hermeneutic analysis and interpretation. Reporting of results is in accordance with the PRISMA (Preferred Reporting Items for Systematic reviews and Meta-Analyses) 2020 Statement.
resultsOf the 1156 records identified, 16 papers were included, from which we extracted named theories (n = 6), implicit theories (n = 5) and models and frameworks (n = 20) used for youth engagement in health research. We identified theories that were explicitly stated and surfaced theories that were more implicitly suggested. Models and frameworks were organized into four categories based on their principal features: power-focused (n = 8), process-focused (n = 7), impact-focused (n = 3) and equity-focused (n = 2). Few frameworks (n = 5) were empirically tested in health-related research.
conclusionsThe state of theoretical development in youth engagement in research is still evolving. In this systematic review, we identified theories, models and frameworks used for youth engagement in health research. Findings from this systematic review offer a range of resources to those who seek to develop and strengthen youth engagement in their own research. PATIENT OR PUBLIC CONTRIBUTION: Youth engaged as patients in the research were not involved in planning or conducting the systematic review. However, youth researchers in their early to mid-20s led the planning, implementation and interpretation of the review. As part of subsequent work, we formed a youth advisory board to develop a youth-led knowledge mobilization intended for an audience of youth with lived experience of being engaged as patients in research.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.