Evidence map›Paper›PMID 39100568›Full record

SynthesisFrontiers in psychology2024

Patient engagement in multimorbidity: a systematic review of patient-reported outcome measures.

Serena Barello, Gloria Anderson, Caterina Bosio, Deirdre A Lane, Donato G Leo, Trudie C A Lobban, Caterina Trevisan, Guendalina Graffigna

Abstract readSystematic Review
In one paragraph

Synthesis in Frontiers in psychology, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed.

  1. Article
  2. Article
  3. Review
  4. Article
  5. Article
  6. Patient health engagement as a predictor of symptom outcomes in patients receiving chemotherapy.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Serena BarelloEngageMinds HUB - Consumer, Food and Health Engagement Research Center, Università Cattolica del Sacro Cuore, Milan, Italy.
Gloria AndersonFondazione Policlinico Universitario Agostino Gemelli IRCCS, Rome, Italy.
Caterina BosioEngageMinds HUB - Consumer, Food and Health Engagement Research Center, Università Cattolica del Sacro Cuore, Milan, Italy.
Deirdre A LaneLiverpool Centre for Cardiovascular Science and Department of Cardiovascular and Metabolic Medicine, Faculty of Health and Life Sciences, University of Liverpool, Liverpool, United Kingdom.
Donato G LeoLiverpool Centre for Cardiovascular Science and Department of Cardiovascular and Metabolic Medicine, Faculty of Health and Life Sciences, University of Liverpool, Liverpool, United Kingdom.
Trudie C A LobbanArrhythmia Alliance, Stratford-upon-Avon, United Kingdom.
Caterina TrevisanDepartment of General Psychology, University of Padua, Padua, Italy.
Guendalina GraffignaEngageMinds HUB - Consumer, Food and Health Engagement Research Center, Università Cattolica del Sacro Cuore, Milan, Italy.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background: People with multimorbidity are increasingly engaged, enabled, and empowered to take responsibility for managing their health status. The purpose of the study was to systematically review and appraise the psychometric properties of tools measuring patient engagement in adults with multimorbidity and their applicability for use within engagement programs. Methods: PubMed, Scopus, Web of Science, and PsycInfo were searched from inception to 1 July 2021. Gray literature was searched using EBSCO host-database "Open dissertation". The reference lists of studies meeting the inclusion criteria were searched to identify additional eligible studies. The screening of the search results and the data extraction were performed independently by two reviewers. The methodological quality of the included studies was evaluated with the COSMIN checklist. Relevant data from all included articles were extracted and summarized in evidence synthesis tables. Results: Twenty articles on eight tools were included. We included tools that measure all four dimensions of patient engagement (i.e., engagement, empowerment, activation, and participation). Their psychometric properties were analyzed separately. Most tools were developed in the last 10 years in Europe or the USA. The comparison of the estimated psychometric properties of the retrieved tools highlighted a significant lack of reliable patient engagement measures for people with multimorbidity. Available measures capture a diversity of constructs and have very limited evidence of psychometric properties that are vital for patient-reported measures, such as invariance, reliability, and responsiveness. Conclusion: This review clarifies how patient engagement, as operationalized in measures purporting to capture this concept, overlaps with, and differs from other related constructs in adults with multimorbidity. The methodological quality of psychometric tools measuring patient engagement in adults with multimorbidity could be improved. Systematic review registration: https://www.crd.york.ac.uk/prospero/display_record.php?RecordID=259968, identifier CRD42021259968.

Indexed as

assessmentmeasuresmultimorbiditypatient empowermentpatient engagement

Identifiers

PMID39100568
PMCPMC11294995

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.