Evidence map›Paper›PMID 39099213›Full record

ArticleArthritis care & research2024

Leveraging the Consolidated Framework for Implementation Research to Develop the American College of Rheumatology's Toolkit for Implementation of Rheumatoid Arthritis Outcome Measures in Clinical Practice: A Qualitative Study.

Catherine Nasrallah, Gabriela Schmajuk, Alicia Hamblin, Cherish Wilson, Emma Kersey, Cammie Young, Patti Katz, Puneet Bajaj, Christina Downey, Christie Bartels and 6 more

Registry-linked trialAbstract readMulticenter Study
In one paragraph

Article in Arthritis care & research, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT05530694 (Implementation of Shared Decision Making in Rheumatoid Arthritis), which is not on this map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT05530694 nacompletednot on this map

Implementation of Shared Decision Making in Rheumatoid Arthritis: A Stepped Wedge, Cluster-randomized Trial

TypeinterventionalSponsorVA Office of Research and DevelopmentRan2022 to 2026Enrolled900ConditionsRheumatoid ArthritisArmsClinician communication training, Patient activation, RA Medication summary guide and RA Choice
3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

16 authors.

Catherine NasrallahUniversity of California, San Francisco.ORCID 0000-0002-0341-5231
Gabriela SchmajukUniversity of California, San Francisco and San Francisco Veterans Affairs Medical Center, San Francisco, California.ORCID 0000-0003-2687-5043
Alicia HamblinUniversity of California, San Francisco.
Cherish WilsonUniversity of California, San Francisco.ORCID 0009-0004-2240-6180
Emma KerseyUniversity of California, San Francisco.
Cammie YoungUniversity of California, San Francisco.ORCID 0009-0006-4085-7983
Patti KatzUniversity of California, San Francisco.ORCID 0000-0002-8146-2519
Puneet BajajUniversity of Texas Southwestern Medical Center, Dallas.ORCID 0000-0002-8688-4059
Christina DowneyLoma Linda University School of Medicine, Loma Linda, California.ORCID 0000-0002-8285-5701
Christie BartelsUniversity of Wisconsin School of Medicine and Public Health, Madison.ORCID 0000-0001-6523-0374
JoAnn ZellUniversity of Colorado, Aurora.
Maria I DanilaUniversity of Alabama at Birmingham and Geriatric Research Education and Clinical Center, Veterans Affairs Birmingham Health Care System, Birmingham, Alabama.ORCID 0000-0001-9246-6200
Sancia FergusonUniversity of Wisconsin School of Medicine and Public Health, Madison.
Jennifer L BartonVeterans Affairs Portland Health Care System and Oregon Health & Science University, Portland.
Kimberly DeQuattroUniversity of Pennsylvania, Philadelphia.
Jinoos YazdanyUniversity of California, San Francisco and Center for Vulnerable Populations and Zuckerberg San Francisco General Hospital, San Francisco, California.ORCID 0000-0002-3508-4094

Funding

RESOURCE-BASED CENTER FOR THE ADVANCEMENT OF PRECISION MEDICINE IN RHEUMATOLOGYP30AR070155 · NIAMS · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI Mary C Nakamura · 2016 to 2026
$8.2M
Advancing Quality and Outcomes Measurement in RheumatologyK24AR074534 · NIAMS · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI Jinoos Yazdany · 2019 to 2026
$1.5M
Rheumatology Informatics System for Effectiveness Patient-Reported Outcome (RISE-PRO) Dissemination ProjectR18HS025638 · AHRQ · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI YAZDANY, JINOOS · 2018 to 2020
$1.5M
Evaluating Health Care Quality in Systemic Lupus ErythematosusK23AR060259 · NIAMS · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI YAZDANY, JINOOS · 2011 to 2015
$638k
AHRQ HHS R18 HS025638AHRQ HHS R18-HS-025638National Institute of Arthritis and Musculoskeletal and Skin Diseases, NIH K24AR074534National Institute of Arthritis and Musculoskeletal and Skin Diseases, NIH P30AR070155NIAMS NIH HHS K23 AR060259NIAMS NIH HHS K24 AR074534
6 · The paper itself

Abstract

objectiveDespite the recognized benefits of collecting rheumatoid arthritis (RA) outcomes measures, their use in routine care is inconsistent. Using the Consolidated Framework for Implementation Research (CFIR), we conducted semistructured interviews with US rheumatologists and practice personnel to assess workflows, opportunities, and challenges in collecting RA outcome measures. Using insights from interviews, we developed the RA Measures Toolkit to enhance their use in clinical practice.

methodsWe invited 138 Rheumatology Informatics System for Effectiveness (RISE) registry practices and 5 academic medical centers with ≥30 patients eligible for RA outcome measures to participate in the study. Practices were classified based on their performance in quality payment programs. Recorded interviews were transcribed verbatim and analyzed thematically using deductive and inductive techniques. The findings were used to create the RA Measures Toolkit.

resultsWe conducted 20 interviews with 38 participants across 20 practices. Key themes within the CFIR domains highlighted the challenges and best practices in RA outcome measure collection and included (1) process: the variability in practices' use of RA outcome measures and the importance of streamlined workflows; (2) intervention: challenges of integrating patient-reported outcomes into electronic health records; and (3) individual characteristics: importance of clinic culture around quality improvement. Using these data, we developed the RA Measures Toolkit, a multimedia online resource, featuring guidelines, best practices, and educational resources to improve the efficiency of current workflows and to enhance patient care.

conclusionThis study identifies critical gaps in the collection of RA outcome measures in US rheumatology practices and provides actionable recommendations and resources to address challenges via the RA Measures Toolkit.

Indexed as

Arthritis, RheumatoidImplementation ScienceQualitative ResearchRheumatologyFemaleHumansInterviews as TopicMaleMiddle AgedPatient Reported Outcome MeasuresRegistriesRheumatologistsTreatment OutcomeUnited StatesWorkflow

Identifiers

PMID39099213
PMCPMC12124192

What OpenQuestion holds

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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.