Evidence map›Paper›PMID 39096208›Full record

ArticleJournal of empirical research on human research ethics : JERHRE2024

Australian Attitudes Towards Waivers of Consent Within the Context of Genomic Data Sharing.

Lyndsay Newett, Rebekah McWhirter, Lisa Eckstein, Vanessa Warren, Dianne Nicol

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of empirical research on human research ethics : JERHRE, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Lyndsay NewettUniversity of Tasmania, Hobart, TAS, Australia.ORCID 0000-0002-1664-3620
Rebekah McWhirterUniversity of Tasmania, Hobart, TAS, Australia.
Lisa EcksteinUniversity of Tasmania, Hobart, TAS, Australia.
Vanessa WarrenUniversity of Tasmania, Hobart, TAS, Australia.ORCID 0000-0001-7445-2569
Dianne NicolUniversity of Tasmania, Hobart, TAS, Australia.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

This research identifies the circumstances in which Human Research Ethics Committees (HRECs) are trusted by Australians to approve the use of genomic data - without express consent - and considers the impact of genomic data sharing settings, and respondent attributes, on public trust. Survey results (

Indexed as

AttitudeEthics Committees, ResearchGenomicsInformation DisseminationInformed ConsentTrustAdolescentAdultAgedAustraliaConfidentialityEthics, ResearchFemaleHumansMaleMiddle AgedAustraliagenomic data sharinghuman research ethics committeespublic trustwaiver of consent

Identifiers

PMID39096208
PMCPMC11298119

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.