Evidence map›Paper›PMID 39089209›Full record

ArticleMolecular genetics and metabolism

Neurocognitive assessment platform for clinical trials in PKU: White paper developed by the NPKUA neurocognitive workgroup.

Susan E Waisbren, Shawn E Christ, Deborah A Bilder, Kendra J Bjoraker, Scout Bolton, Sarah Chamberlin, Mitzie L Grant, Darren M Janzen, Rachel Katz, Eugene Lubliner and 8 more

Abstract readConsensus Statement
PubMed Full text at PMC Publisher
In one paragraph

Article in Molecular genetics and metabolism. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

18 authors.

Susan E WaisbrenBoston Children's Hospital and Harvard Medical School, Boston, MA, United States of America. Electronic address: Susan.waisbren@childrens.harvard.edu.
Shawn E ChristClinical Neuropsychology Laboratory, University of Missouri, Columbia, MO, United States of America.
Deborah A BilderHuntsman Mental Health Institute, University of Utah, Salt Lake City, UT, United States of America.
Kendra J Bjoraker3:1 Neuropsychology Consultants, PLLC, Aurora, CO, United States of America.
Scout BoltonClinical Neuropsychology Laboratory, University of Missouri, Columbia, MO, United States of America.
Sarah Chamberlinflok Health.org (advocacy and research organization), Montclair, NJ, United States of America.
Mitzie L GrantTower Health Medical Group, St. Christopher's Hospital for Children, and Drexel College of Medicine, Philadelphia, PA, United States of America.
Darren M JanzenDoernbecher Children's Hospital and Oregon Health & Science University, Portland, OR, United States of America.
Rachel KatzAnn & Robert H. Lurie Children's Hospital, Division of Genetics, Genomics and Metabolism, Chicago, IL, United States of America.
Eugene LublinerLubliner Psychological Services, Miller Place, NY and Hofstra University, Hempstead, NY, United States of America.
Arianna MartinDepartment of Pediatrics, Section of Neurology, Children's Hospital Colorado and University of Colorado School of Medicine, Aurora, CO, United States of America.
Kelsey McQueenNational PKU Alliance, United States of America.
Olga MoshkovichICON Insights, Evidence and Value, Raleigh, NC, United States of America.
Mina Nguyen-DriverUniversity of Arkansas for Medical Sciences, Little Rock, AR, United States of America.
Soo ShimAnn & Robert H. Lurie Children's Hospital, Division of Genetics, Genomics and Metabolism, Chicago, IL, United States of America.
Arianna K StefanatosChildren's Hospital of Philadelphia, Philadelphia, PA, United States of America.
Greta WilkeningChildren's Hospital of Colorado, University of Colorado Schools of Medicine and Public Health, Aurora, CO, United States of America.
Cary HardingDoernbecher Children's Hospital and Oregon Health & Science University, Portland, OR, United States of America.

Funding

Quantitative Measurement of Phenylalanine Metabolism in Sapropterin-Responsive HyperphenylalaninemiaU54HD100982 · NICHD · OREGON HEALTH & SCIENCE UNIVERSITY · PI HARDING, CARY O. · 2019 to 2023
$7.9M
NICHD NIH HHS U54 HD100982
6 · The paper itself

Abstract

PubMed holds no abstract for this paper.

Indexed as

Clinical Trials as TopicPhenylketonuriasChildCognitionHumansNeuropsychological TestsClinical trialsFunctional outcomesNeuropsychological outcomesPhenylketonuriaPKU

Identifiers

PMID39089209
PMCPMC12377181

What OpenQuestion holds

Textmetadata
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.