Evidence map›Paper›PMID 39087319›Full record

ReviewBJPsych open2024

Approaches to improving mental healthcare for autistic people: systematic review.

Sofia Loizou, Tamara Pemovska, Theodora Stefanidou, Una Foye, Ruth Cooper, Ariana Kular, Anna Greenburgh, Helen Baldwin, Jessica Griffiths, Katherine R K Saunders and 21 more

Abstract readReview
PubMed Full text at PMC Publisher
In one paragraph

Review in BJPsych open, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
  3. Article
  4. Article
  5. Article
  6. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

31 authors.

Sofia LoizouNational Institute for Health and Care Research (NIHR) Mental Health Policy Research Unit, King's College London, UK.ORCID https://orcid.org/0000-0003-3835-7278
Tamara PemovskaNIHR Mental Health Policy Research Unit, Division of Psychiatry, University College London, UK.ORCID https://orcid.org/0000-0003-4362-0165
Theodora StefanidouNIHR Mental Health Policy Research Unit, Division of Psychiatry, University College London, UK.
Una FoyeNational Institute for Health and Care Research (NIHR) Mental Health Policy Research Unit, King's College London, UK.
Ruth CooperNational Institute for Health and Care Research (NIHR) Mental Health Policy Research Unit, King's College London, UK.
Ariana KularNIHR Mental Health Policy Research Unit, Division of Psychiatry, University College London, UK.
Anna GreenburghNIHR Mental Health Policy Research Unit, Division of Psychiatry, University College London, UK.
Helen BaldwinNIHR Mental Health Policy Research Unit, Division of Psychiatry, University College London, UK.
Jessica GriffithsNational Institute for Health and Care Research (NIHR) Mental Health Policy Research Unit, King's College London, UK.
Katherine R K SaundersNational Institute for Health and Care Research (NIHR) Mental Health Policy Research Unit, King's College London, UK.ORCID https://orcid.org/0000-0002-8484-0888
Phoebe BarnettNIHR Mental Health Policy Research Unit, Division of Psychiatry, University College London, UK; Centre for Outcomes Research and Effectiveness, Research Department of Clinical, Educational and Health Psychology, University College London, UK; and National Collaborating Centre for Mental Health, Royal College of Psychiatrists, London, UK.ORCID https://orcid.org/0000-0001-6521-3101
Matilda MinchinDivision of Psychiatry, University College London, UK.
Gráinne BradyDivision of Psychiatry, University College London, UK.
Nafiso AhmedNIHR Mental Health Policy Research Unit, Division of Psychiatry, University College London, UK.
Jennie ParkerNIHR Mental Health Policy Research Unit Lived Experience Working Group, Division of Psychiatry, University College London, UK; and School of Health and Psychological Sciences, City, University of London, UK.
Beverley ChippNIHR Mental Health Policy Research Unit Lived Experience Working Group, Division of Psychiatry, University College London, UK.
Rachel R OliveNIHR Mental Health Policy Research Unit Lived Experience Working Group, Division of Psychiatry, University College London, UK.
Robin JacksonLancaster and Morecambe Child and Adolescent Mental Health Services, Lancashire and South Cumbria NHS Foundation Trust, Morecambe, UK; and University of Wolverhampton, UK.
Amanda TimmermanDepartment of Clinical, Educational and Health Psychology, University College London, UK.
Suzi SapietsTizard Centre, University of Kent, UK.
Eva DriskellNHS England, London, UK.
Bethany ParsonsNHS England, London, UK.
Debbie SpainNHS England, London, UK.
Vaso TotsikaDivision of Psychiatry, University College London, UK.ORCID https://orcid.org/0000-0003-1702-2727
Will MandyDepartment of Clinical, Educational and Health Psychology, University College London, UK.ORCID https://orcid.org/0000-0002-3564-5808
Richard PenderDepartment of Clinical, Educational and Health Psychology, University College London, UK.ORCID https://orcid.org/0000-0001-9937-5440
Philippa CleryDivision of Psychiatry, University College London, UK; and Camden and Islington NHS Foundation Trust, London, UK.
Kylee TrevillionNational Institute for Health and Care Research (NIHR) Mental Health Policy Research Unit, King's College London, UK.ORCID https://orcid.org/0000-0001-5865-4726
Brynmor Lloyd-EvansNIHR Mental Health Policy Research Unit, Division of Psychiatry, University College London, UK.ORCID https://orcid.org/0000-0001-9866-788X
Alan SimpsonNational Institute for Health and Care Research (NIHR) Mental Health Policy Research Unit, King's College London, UK.
Sonia JohnsonNIHR Mental Health Policy Research Unit, Division of Psychiatry, University College London, UK; and Camden and Islington NHS Foundation Trust, London, UK.

Funding

National Institute for Health and Care Research PR-PRU-0916-22003
6 · The paper itself

Abstract

backgroundAutistic people have a high likelihood of developing mental health difficulties but a low chance of receiving effective mental healthcare. Therefore, there is a need to identify and examine strategies to improve mental healthcare for autistic people.

aimsTo identify strategies that have been implemented to improve access, experiences of care and mental health outcomes for autistic adults, and to examine evidence on their acceptability, feasibility and effectiveness.

methodA co-produced systematic review was conducted. MEDLINE, PsycINFO, CINHAL, medRxiv and PsyArXiv were searched. We included all study designs reporting acceptability or feasibility outcomes and empirical quantitative study designs reporting effectiveness outcomes. Data were synthesised using a narrative approach.

resultsA total of 30 articles were identified. These included 16 studies of adapted mental health interventions, eight studies of service improvements and six studies of bespoke mental health interventions developed for autistic people. There was no conclusive evidence on effectiveness. However, most bespoke and adapted approaches appeared to be feasible and acceptable. Identified adaptations appeared to be acceptable and feasible, including increasing knowledge and detection of autism, providing environmental adjustments and communication accommodations, accommodating individual differences and modifying the structure and content of interventions.

conclusionMany identified strategies are feasible and acceptable, and can be readily implemented in services with the potential to make mental healthcare more suitable for autistic people, but important research gaps remain. Future research should address these and investigate a co-produced package of service improvement measures.

Indexed as

adaptationsadultsAutism spectrum conditionmental healthmental healthcare

Identifiers

PMID39087319
PMCPMC11698219

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.