ArticleBMC palliative care2024
Social support resources in adolescents and young adults with advanced cancer: a qualitative analysis.
Article in BMC palliative care, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.
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Who cites it
12 citing papers in PubMed.
- Article
- Latent profiles of social connectedness and associated factors in maintenance hemodialysis patients.Scientific reports · 2026Article
- The protective role of self-esteem for functional well-being in the context of cancer-related distress among young adults with cancer.Journal of behavioral medicine · 2026Article
- Mediating Role of Dyadic Coping Between Social Support and Oral Frailty Cross-Sectional Study of Elderly Ovarian Cancer Patients in China.International journal of women's health · 2026Article
- Oral mucositis self-management ability among cancer survivors receiving radiotherapy or chemotherapy in China: A latent profile analysis.Asia-Pacific journal of oncology nursing · 2025Article
- 'What Really Goes on in My Cancer Bubble, They Cannot Understand': Social Functioning Among Adolescent and Young Adult (AYA) Cancer Patients.Current oncology (Toronto, Ont.) · 2025Article
- The Unmet Needs of Palliative Care Among Young and Middle-Aged Patients with Advanced Cancer: A Qualitative Study.Current oncology (Toronto, Ont.) · 2025Article
- Relationship between uncertainty in illness and fear of progression among lung cancer patients: The chain mediation model.World journal of psychiatry · 2025Article
- Oral frailty and its influencing factors in patients with cancer undergoing chemotherapy: a cross-sectional study.BMC oral health · 2025Article
- Latent Profile Analysis of Flourishing in Patients Undergoing Chemotherapy After Ovarian Cancer Surgery: A Single-Center Study in Shanxi.Cancer management and research · 2025Article
- Latent Profile Analysis of Post-Surgical Psychological Distress in Young Thyroid Cancer Patients and Its Association with Self-Management Efficacy.Journal of multidisciplinary healthcare · 2025Article
- Development of Educational Guidance Sessions for Adolescents and Young Adults With Cancer and Their Caregivers: A Component of the AYA-NAV Intervention.Cancer control : journal of the Moffitt Cancer CenterArticle
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Authors and funding
7 authors.
Funding
Abstract
purposeAdolescents and Young Adults (AYAs) with cancer are an at-risk group with unique palliative and supportive care needs. Social support in AYAs with cancer is associated with better coping, quality of life, and psychosocial well-being. Here, we extend existing research to examine the sources and types of support received by AYAs with advanced cancer.
methodsAYAs participated in a semi-structured, 1:1 interview on communication and psychosocial support needs. The present analysis focused on social support experiences for AYAs with advanced cancer. Directed content analysis was used to develop the codebook. Established social support constructs provided a coding framework. We presented our qualitative findings as a code frequency report with quantified frequency counts of all "source of support" and "type of support" codes. We assigned a global "sufficiency of support code" to each AYA.
resultsWe interviewed 32 AYAs with advanced cancer (Mage = 18, SDage = 3.2, 41% female). Most AYAs identified family (namely, caregivers) as their primary source of support and stated that family universally provided all types of support: emotional, informational, instrumental, and social companionship. They received informational and emotional support from clinicians, and received emotional support and social companionship from healthy peers, cancer peers, and their existing community. One-third of participants were coded as having "mixed support" and described a lack of support in some domains.
conclusionAYAs with advanced cancer described caregivers as their universal source of support, and that other support sources provided support for specific needs. Future research should continue to evaluate social support needs and family-based palliative and supportive care interventions to bolster social support resources in this high-risk group.
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