Evidence map›Paper›PMID 39083768›Full record

ArticleJMIR human factors2024

Making Co-Design More Responsible: Case Study on the Development of an AI-Based Decision Support System in Dementia Care.

Dirk R M Lukkien, Sima Ipakchian Askari, Nathalie E Stolwijk, Bob M Hofstede, Henk Herman Nap, Wouter P C Boon, Alexander Peine, Ellen H M Moors, Mirella M N Minkman

Abstract read
In one paragraph

Article in JMIR human factors, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.

0numbers the graph read from it
0cells of the map it votes in
9citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

9 citing papers in PubMed.

  1. Article
  2. A strategic pathway for the ethical development of AI tools in dementia care.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2026
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  3. Article
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  6. Review
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Dirk R M LukkienVilans Centre of Expertise of Long Term Care, Utrecht, Netherlands.ORCID 0000-0001-5911-0958
Sima Ipakchian AskariVilans Centre of Expertise of Long Term Care, Utrecht, Netherlands.ORCID 0009-0004-5874-8916
Nathalie E StolwijkVilans Centre of Expertise of Long Term Care, Utrecht, Netherlands.ORCID 0009-0001-0635-6839
Bob M HofstedeVilans Centre of Expertise of Long Term Care, Utrecht, Netherlands.ORCID 0000-0001-6967-3711
Henk Herman NapVilans Centre of Expertise of Long Term Care, Utrecht, Netherlands.ORCID 0000-0003-2545-0510
Wouter P C BoonCopernicus Institute of Sustainable Development, Utrecht University, Utrecht, Netherlands.ORCID 0000-0003-1218-193X
Alexander PeineFaculty of Humanities, Open University of The Netherlands, Heerlen, Netherlands.ORCID 0000-0002-2395-8487
Ellen H M MoorsCopernicus Institute of Sustainable Development, Utrecht University, Utrecht, Netherlands.ORCID 0000-0002-9724-5308
Mirella M N MinkmanVilans Centre of Expertise of Long Term Care, Utrecht, Netherlands.ORCID 0000-0003-4922-5983

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundEmerging technologies such as artificial intelligence (AI) require an early-stage assessment of potential societal and ethical implications to increase their acceptability, desirability, and sustainability. This paper explores and compares 2 of these assessment approaches: the responsible innovation (RI) framework originating from technology studies and the co-design approach originating from design studies. While the RI framework has been introduced to guide early-stage technology assessment through anticipation, inclusion, reflexivity, and responsiveness, co-design is a commonly accepted approach in the development of technologies to support the care for older adults with frailty. However, there is limited understanding about how co-design contributes to the anticipation of implications.

objectiveThis paper empirically explores how the co-design process of an AI-based decision support system (DSS) for dementia caregivers is complemented by explicit anticipation of implications.

methodsThis case study investigated an international collaborative project that focused on the co-design, development, testing, and commercialization of a DSS that is intended to provide actionable information to formal caregivers of people with dementia. In parallel to the co-design process, an RI exploration took place, which involved examining project members' viewpoints on both positive and negative implications of using the DSS, along with strategies to address these implications. Results from the co-design process and RI exploration were analyzed and compared. In addition, retrospective interviews were held with project members to reflect on the co-design process and RI exploration.

resultsOur results indicate that, when involved in exploring requirements for the DSS, co-design participants naturally raised various implications and conditions for responsible design and deployment: protecting privacy, preventing cognitive overload, providing transparency, empowering caregivers to be in control, safeguarding accuracy, and training users. However, when comparing the co-design results with insights from the RI exploration, we found limitations to the co-design results, for instance, regarding the specification, interrelatedness, and context dependency of implications and strategies to address implications.

conclusionsThis case study shows that a co-design process that focuses on opportunities for innovation rather than balancing attention for both positive and negative implications may result in knowledge gaps related to social and ethical implications and how they can be addressed. In the pursuit of responsible outcomes, co-design facilitators could broaden their scope and reconsider the specific implementation of the process-oriented RI principles of anticipation and inclusion.

Indexed as

Artificial IntelligenceDementiaCaregiversDecision Support Systems, ClinicalHumansco-designdecision support systemsdementiaethicsgerontechnologylong-term careresponsible innovation

Identifiers

PMID39083768
PMCPMC11325107

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.