Evidence map›Paper›PMID 39080694›Full record

ArticleBMC health services research2024

Using a novel methodology to map Post-COVID services for children and young people in England: a web-based systematic search.

Fiona Newlands, Lana Fox-Smith, Sonia Balakrishnan, Gareth Lord, Trudie Chalder, Emma Dalrymple, Tamsin Ford, Anthony Harnden, Isobel Heyman, Shamez N Ladhani and 5 more

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In one paragraph

Article in BMC health services research, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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0citing papers in PubMed
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1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

15 authors.

Fiona NewlandsUCL Great Ormond Street Institute of Child Health, 30 Guilford Street, London, WC1N 1EH, England, UK. fiona.newlands.18@ucl.ac.uk.
Lana Fox-SmithUCL Great Ormond Street Institute of Child Health, 30 Guilford Street, London, WC1N 1EH, England, UK.
Sonia BalakrishnanKing's College London, De'Crespigny Park, London, SE5 8AF, England, UK.
Gareth LordNHS England, Quarry House, Leeds, LS2 7PD, England, UK.
Trudie ChalderInstitute of Psychiatry, Psychology and Neuroscience, King's College London, De'Crespigny Park, London, SE5 8AF, England, UK.
Emma DalrympleUCL Great Ormond Street Institute of Child Health, 30 Guilford Street, London, WC1N 1EH, England, UK.
Tamsin FordDepartment of Psychiatry, University of Cambridge, Cambridge, England, UK.
Anthony HarndenNuffield Department of Primary Care Health Sciences, University of Oxford, Oxford, England, UK.
Isobel HeymanUCL Great Ormond Street Institute of Child Health, 30 Guilford Street, London, WC1N 1EH, England, UK.
Shamez N LadhaniPaediatric Infectious Diseases Research Group, St George's University of London, London, England, UK.
Snehal M Pinto PereiraDivision of Surgery & Interventional Science, Faculty of Medical Sciences, University College London, London, WC1E 6BT, England, UK.
Terry Y SegalUniverisity College London Hospital, 235 Euston Rd, London, NW1 2BU, England, UK.
Terence StephensonUCL Great Ormond Street Institute of Child Health, 30 Guilford Street, London, WC1N 1EH, England, UK.
Elizabeth WhittakerImperial College Healthcare NHS Trust, The Bays, S Wharf Rd, London, W2 1NY, England, UK.
Roz ShafranUCL Great Ormond Street Institute of Child Health, 30 Guilford Street, London, WC1N 1EH, England, UK.

Funding

Beryl Alexander Charity Award number: 183885Medical Research Council MR/P020372/1
6 · The paper itself

Abstract

backgroundPost-COVID Condition (PCC), also known as 'Long COVID,' refers to persistent symptoms following a coronavirus 2 (SARS-CoV-2) infection. The prevalence of PCC in children and adolescents varies, impacting multiple body systems and affecting daily functioning. Specialised paediatric hubs were established in England to address the needs of young individuals with PCC. Additional local services also emerged, yet patients report challenges accessing services. To better understand the landscape of paediatric PCC services, we used a novel methodology using a web-based systematic search.

methodsA web-based search was conducted in July 2023 using DEVONagent Pro. Search terms related to Long COVID and Pediatrics in England. Eligible sources providing information on PCC services for children and young people were included. A supplementary manual search and NHS England Post-COVID Network were also consulted. Data extraction included service location, characteristics, and referral pathways. Population estimates were derived from UK Census data.

resultsAmong 342 identified records, 27 services met eligibility criteria, distributed unevenly across regions. Specialised hubs covered 13 locations, while additional services were concentrated in the South of England and London. Services varied in team composition, age range treated, and support offered. A lack of standardised approaches for paediatric PCC was evident. DISCUSSION: We used a novel methodology for systematically mapping online resources, providing valuable insights into service accessibility and aiding the identification of potential gaps. We observed geographical disparities in access to paediatric PCC services and the absence of standardised approaches in managing symptoms. Given the challenges faced by young individuals seeking support for their PCC the need for equitable and standardised care became apparent. The study contributes to closing the research-practice gap and calls for further research to identify effective treatments for paediatric PCC, acknowledging the diversity of reported symptoms and the importance of tailored approaches.

Indexed as

COVID-19InternetAdolescentChildChild Health ServicesChild, PreschoolEnglandHealth Services AccessibilityHumansChildren and young peopleLong COVIDPaediatricPost-COVID servicesSARS-CoV-2

Identifiers

PMID39080694
PMCPMC11288108

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.