Evidence map›Paper›PMID 39080093›Full record

ArticleThe European journal of health economics : HEPAC : health economics in prevention and care2025

The formal care costs of dementia: a longitudinal study using Swedish register data.

Jennifer Zilling, Ulf-G Gerdtham, Johan Jarl, Sanjib Saha, Sofie Persson

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Article in The European journal of health economics : HEPAC : health economics in prevention and care, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
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1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

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Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Jennifer ZillingHealth Economics Unit, Department of Clinical Sciences (Malmö), Forum Medicum, Lund University, Sölvegatan 19, 223 62, Lund, Sweden.ORCID http://orcid.org/0009-0000-9722-0293
Ulf-G GerdthamHealth Economics Unit, Department of Clinical Sciences (Malmö), Forum Medicum, Lund University, Sölvegatan 19, 223 62, Lund, Sweden.
Johan JarlHealth Economics Unit, Department of Clinical Sciences (Malmö), Forum Medicum, Lund University, Sölvegatan 19, 223 62, Lund, Sweden.
Sanjib SahaHealth Economics Unit, Department of Clinical Sciences (Malmö), Forum Medicum, Lund University, Sölvegatan 19, 223 62, Lund, Sweden.
Sofie PerssonHealth Economics Unit, Department of Clinical Sciences (Malmö), Forum Medicum, Lund University, Sölvegatan 19, 223 62, Lund, Sweden. sofie.persson@med.lu.se.ORCID http://orcid.org/0000-0001-8372-0908

Funding

Crafoordska Stiftelsen 20210861
6 · The paper itself

Abstract

backgroundThis study investigates the excess costs of dementia from healthcare, social care services, and prescription drugs 3 years before to 6 years after diagnosis. Further, sociodemographic cost differences are explored.

methodsUsing Swedish register data from 2013 to 2016 to compare individuals diagnosed with dementia (n = 15,339) with population controls, the excess formal care costs for people with a dementia diagnosis are obtained with longitudinal regression analysis.

resultsPeople with dementia incur higher formal care costs for all years studied compared to people without dementia. The excess costs vary from €3400 3 years before diagnosis to €49,700 6 years after diagnosis. The costs are mainly driven by institutional care, and solitary living is a strong predictor of high excess costs.

conclusionThe results show that the formal care costs of individuals with dementia are substantial, and that the economic burden of dementia in Sweden is larger than previously estimated.

Indexed as

Cost of IllnessDementiaHealth Care CostsAgedAged, 80 and overFemaleHumansLongitudinal StudiesMaleMiddle AgedRegistriesSocioeconomic FactorsSwedenAlzheimer’s diseaseDementiaExcess costsFormal careRegister dataSweden

Identifiers

PMID39080093
PMCPMC11937048

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.