Evidence map›Paper›PMID 39079899›Full record

SynthesisArchives of disease in childhood2024

Integrated care for children and young people with special health and care needs: a systematic review.

Swapnil Ghotane, Raeena Hirve, Julia Forman, Daniel Tan, Zak Achercouk, Ingrid Wolfe

Abstract readSystematic Review
In one paragraph

Synthesis in Archives of disease in childhood, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
  4. Article
  5. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Swapnil GhotaneDepartment of Women & Children's Health, King's College London, London, UK swapnil.ghotane@kcl.ac.uk.ORCID 0000-0001-8515-8648
Raeena HirveDepartment of Women & Children's Health, King's College London, London, UK.
Julia FormanDepartment of Women & Children's Health, King's College London, London, UK.
Daniel TanUniversity of Cambridge, Cambridge, UK.
Zak AchercoukUniversity of Cambridge, Cambridge, UK.
Ingrid WolfeDepartment of Women & Children's Health, King's College London, London, UK.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

contextThere is a dearth of high-quality evidence on integrated, coordinated and cost-effective care for children with special health and care needs (CSHCN).

objectiveTo assess the effectiveness of integrated/coordinated care models for CSHCN. DATA SOURCES: Embase, Ovid Medline(R), HMIC Health Management Information Consortium, Maternity & Infant Care Database (MIDIRS), PsycARTICLES, PsycINFO, Social Policy and Practice, Cochrane Central Register of Controlled Trials (CENTRAL), Global Health and PubMed. STUDY SELECTION: Inclusion criteria comprised (1) randomised trials, including cluster randomised trials; (2) an integrated/coordinated care intervention; (3) for children and young people under 25 with special healthcare needs including medical complexity; (4) assessing child-centred outcomes, health-related quality of life among parents and carers, and health or social care use, processes of care and satisfaction with care. DATA EXTRACTION: Data were extracted and assessed by two researchers, and descriptive data were synthesised according to outcome and intervention.

results14 randomised controlled studies were included. Seven out of the 14 studies had a dedicated key worker/care coordinator as a vital part of the integrated/coordinated care intervention; however, the certainty of evidence for all outcomes was either 'low' or 'very low'. LIMITATIONS: Included studies were mostly from high-income countries. Variable study outcomes and quality of evidence precluded meta-analysis.

conclusionsLimited evidence favours integrated care for CSHCN using a dedicated key worker/care coordinator; however, heterogeneity in study outcomes and definitions of CSHCN limit the strength and utility of evidence obtained. Recommendations are made for improving integrated care practice, research and evaluation which are important for evidence-based health services for CSHCN. PROSPERO REGISTRATION NUMBER: CRD42020209320.

Indexed as

Child Health ServicesChildren with DisabilitiesDelivery of Health Care, IntegratedAdolescentChildChild, PreschoolHealth Services Needs and DemandHumansInfantQuality of LifeRandomized Controlled Trials as TopicYoung AdultChild HealthChild Health Services

Identifiers

PMID39079899
PMCPMC11503122

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.