Evidence map›Paper›PMID 39073852›Full record

ArticleJMIR cancer2024

Using a Mobile Messenger Service as a Digital Diary to Capture Patients' Experiences Along Their Interorganizational Treatment Path in Gynecologic Oncology: Lessons Learned.

Eleonore Baum, Christian Thiel, Andrea Kobleder, Daniela Bernhardsgrütter, Ramona Engst, Carola Maurer, Antje Koller

Abstract read
In one paragraph

Article in JMIR cancer, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Eleonore BaumInstitute of Applied Nursing Science, School of Health, Eastern Switzerland University of Applied Sciences, St.Gallen, Switzerland.ORCID https://orcid.org/0000-0001-8995-9872
Christian ThielInstitute for Information and Process Management, Eastern Switzerland University of Applied Sciences, St.Gallen, Switzerland.ORCID https://orcid.org/0000-0002-4219-3694
Andrea KoblederInstitute of Applied Nursing Science, School of Health, Eastern Switzerland University of Applied Sciences, St.Gallen, Switzerland.ORCID https://orcid.org/0000-0001-5246-0584
Daniela BernhardsgrütterInstitute of Applied Nursing Science, School of Health, Eastern Switzerland University of Applied Sciences, St.Gallen, Switzerland.ORCID https://orcid.org/0009-0007-9455-8097
Ramona EngstInstitute of Applied Nursing Science, School of Health, Eastern Switzerland University of Applied Sciences, St.Gallen, Switzerland.ORCID https://orcid.org/0009-0004-1913-1198
Carola MaurerInstitute of Applied Nursing Science, School of Health, Eastern Switzerland University of Applied Sciences, St.Gallen, Switzerland.ORCID https://orcid.org/0000-0002-2731-7767
Antje KollerInstitute of Applied Nursing Science, School of Health, Eastern Switzerland University of Applied Sciences, St.Gallen, Switzerland.ORCID https://orcid.org/0000-0002-5884-0649

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

A digital diary in the form of a mobile messenger service offers a novel method for data collection in cancer research. Little is known about the things to consider when using this data collection method in clinical research for patients with cancer. In this Viewpoint paper, we discuss the lessons we learned from using a qualitative digital diary method via a mobile messenger service for data collection in oncology care. The lessons learned focus on three main topics: (1) data quality, (2) practical aspects, and (3) data protection. We hope to provide useful information to other researchers who consider this method for their research with patients. First, in this paper, we argue that the interactive nature of a digital diary via a messenger service is very well suited for the phenomenological approach and produces high-quality data. Second, we discuss practical issues of data collection with a mobile messenger service, including participant and researcher interaction. Third, we highlight corresponding aspects around technicalities, particularly those regarding data security. Our views on data privacy and information security are summarized in a comprehensive checklist to inform fellow researchers on the selection of a suitable messenger service for different scenarios. In our opinion, a digital diary via a mobile messenger service can provide high-quality data almost in real time and from participants' daily lives. However, some considerations must be made to ensure that patient data are sufficiently protected. The lessons we learned can guide future qualitative research using this relatively novel method for data collection in cancer research.

Indexed as

breast neoplasmscomputer securityconfidentialitydata collectionmobile appsmobile phoneoncology

Identifiers

PMID39073852
PMCPMC11319886

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.