Evidence map›Paper›PMID 39073437›Full record

ArticleImmunotherapy2024

A patient empowerment program for primary immunodeficiency improves quality of life in children and adolescents.

Maria Fasshauer, Gesine Schuermann, Norbert Gebert, Horst von Bernuth, Monika Bullinger, Sigune Goldacker, Renate Krueger, Petra Manzey, Stefanie Messner, Ellen D Renner and 6 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Immunotherapy, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

16 authors.

Maria FasshauerKlinikum St. Georg, Klinik für Kinder- und Jugendmedizin - ImmunDefektCentrum Leipzig IDCL, Leipzig, Germany.ORCID 0000-0003-4543-8543
Gesine SchuermannMedizinische Hochschule Hannover, Arbeitsbereich Immunologie, Klinik für Pädiatrische Pneumologie, Allergologie und Neonatologie, Hannover, Germany.
Norbert GebertPrivate Psychotherapeutische Praxis, Panketal, Germany.
Horst von BernuthCharité - Universitätsmedizin Berlin, corporate member of Freie Universität Berlin, Humboldt-Universität zu Berlin & Berlin Institute of Health (BIH), Klinik für Pädiatrie mit Schwerpunkt Pneumologie, Immunologie und Intensivmedizin, Berlin, Germany.
Monika BullingerUniversitätsklinikum Eppendorf, Zentrum für Psychosoziale Medizin, Institut und Poliklinik für Medizinische Psychologie, Hamburg, Germany.
Sigune GoldackerUniversitätsklinikum Freiburg, Centrum für Chronische Immundefizienz (CCI), Freiburg, Germany.
Renate KruegerCharité- Universitätsmedizin Berlin, ImmunDefektCentrum Berlin, Berlin, Germany.
Petra ManzeyLudwig-Maximilian-Universität München, Dr. von Haunersches Kinderspital, Immundefektambulanz, München, Germany.
Stefanie MessnerUniversitätsklinikum Freiburg, Centrum für Chronische Immundefizienz (CCI), Freiburg, Germany.
Ellen D RennerUniversität Augsburg, Medizinische Fakultät, Translationale Immunologie, Augsburg, Germany.
Henrike RitterbuschUniversitätsklinikum Freiburg, Centrum für Chronische Immundefizienz (CCI), Freiburg, Germany.
Uwe SchauerRuhr-Universität Bochum im St. Josef Hospital, Klinik für Kinder- und Jugendmedizin, Bochum, Germany.
Ilka SchulzeKiJuMed-Gemeinschaftspraxis für Kinder- und Jugendmedizin sowie Kinder- und Jugendpsychotherapie, Bern, Switzerland.
Volker UmlaufInselspital, Kinderklinik, Bern, Switzerland.
Steffi WidmannLudwig-Maximilian-Universität München, Dr. von Haunersches Kinderspital, Immundefektambulanz, München, Germany.
Ulrich BaumannMedizinische Hochschule Hannover, Arbeitsbereich Immunologie, Klinik für Pädiatrische Pneumologie, Allergologie und Neonatologie, Hannover, Germany.

Funding

Bundesministerium für Bildung und Forschung FKZ: 01GM0894, project A6
6 · The paper itself

Abstract

PubMed holds no abstract for this paper.

Indexed as

Quality of LifeAdolescentChildChild, PreschoolEmpowermentFemaleHumansImmunologic Deficiency SyndromesMaleParentsPatient ParticipationPrimary Immunodeficiency DiseasesSurveys and QuestionnairesDISABKIDS-37education programIgG replacement therapyinborn errors of immunityKIDSCREEN-27patient empowerment programprimary immunodeficiencyquality of life

Identifiers

PMID39073437
PMCPMC11457644

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.