Evidence map›Paper›PMID 39069298›Full record

ArticleIntellectual and developmental disabilities2024

Exploring the Involvement of Autistic Youth in Decision Making About Services.

Meghan M Burke, Megan Best, W Catherine Cheung, Leann Smith DaWalt, Julie Lounds Taylor

Abstract read
In one paragraph

Article in Intellectual and developmental disabilities, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Meghan M BurkeMeghan M. Burke, Vanderbilt University; Megan Best, University of Illinois at Urbana-Champaign; W. Catherine Cheung, Northern Illinois University; Leann Smith DaWalt, University of Wisconsin at Madison; and Julie Lounds Taylor, Vanderbilt University Medical Center.
Megan BestMeghan M. Burke, Vanderbilt University; Megan Best, University of Illinois at Urbana-Champaign; W. Catherine Cheung, Northern Illinois University; Leann Smith DaWalt, University of Wisconsin at Madison; and Julie Lounds Taylor, Vanderbilt University Medical Center.
W Catherine CheungMeghan M. Burke, Vanderbilt University; Megan Best, University of Illinois at Urbana-Champaign; W. Catherine Cheung, Northern Illinois University; Leann Smith DaWalt, University of Wisconsin at Madison; and Julie Lounds Taylor, Vanderbilt University Medical Center.
Leann Smith DaWaltMeghan M. Burke, Vanderbilt University; Megan Best, University of Illinois at Urbana-Champaign; W. Catherine Cheung, Northern Illinois University; Leann Smith DaWalt, University of Wisconsin at Madison; and Julie Lounds Taylor, Vanderbilt University Medical Center.
Julie Lounds TaylorMeghan M. Burke, Vanderbilt University; Megan Best, University of Illinois at Urbana-Champaign; W. Catherine Cheung, Northern Illinois University; Leann Smith DaWalt, University of Wisconsin at Madison; and Julie Lounds Taylor, Vanderbilt University Medical Center.

Funding

The Vanderbilt Institute for Clinical and Translational Research (VICTR)UL1TR000445 · NCATS · VANDERBILT UNIVERSITY MEDICAL CENTER · PI BERNARD, GORDON RAPHAEL · 2012 to 2016
$41.4M
Overall: Eunice Kennedy Shriver Intellectual and Developmental Disabilities Research Center at VanderbiltP50HD103537 · NICHD · VANDERBILT UNIVERSITY MEDICAL CENTER · PI Jeffrey L Neul · 2020 to 2026
$10.3M
Waisman Center Intellectual and Developmental Disabilities Research CenterP50HD105353 · NICHD · UNIVERSITY OF WISCONSIN-MADISON · PI Qiang Chang · 2021 to 2026
$8.5M
Improving Transition Outcomes for Youth with Autism through Parent Advocacy Training: A Multi-State Randomized Controlled TrialR01MH116058 · NIMH · VANDERBILT UNIVERSITY MEDICAL CENTER · PI TAYLOR, JULIE LOUNDS · 2019 to 2023
$4.1M
NCATS NIH HHS UL1 TR000445NICHD NIH HHS P50 HD103537NICHD NIH HHS P50 HD105353NIMH NIH HHS R01 MH116058
6 · The paper itself

Abstract

Although services are critical for many transition-aged youth, it is unclear the extent to which autistic youth participate in decisions about their services. By exploring the perceptions of autistic youth about their role in services, interventions can be developed to improve their participation. In this study, we interviewed 43 transition-aged youth with autism to explore their involvement in decisions about services. Most youth reported not being involved in decision making about the types and modalities of disability services. When youth were involved in decisions, the services were often related to education. Although youth reported that their parents typically spearheaded decisions about services, youth also reported that their parents often listened to their input. Implications for research, policy, and practice are discussed.

Indexed as

Autistic DisorderDecision MakingAdolescentAutism Spectrum DisorderChildFemaleHumansMaleParentsPatient ParticipationYoung Adultautismdecision makingdisabilityfamiliesservices

Identifiers

PMID39069298
PMCPMC13085781

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.