Evidence map›Paper›PMID 39068415›Full record

ArticleJournal of neurodevelopmental disorders2024

Development and psychometric properties of the Clinical Anxiety Scale for People with Intellectual Disabilities (ClASP-ID).

Jessica Eliza Mingins, Joanne Tarver, Effie Pearson, Georgina Edwards, Megan Bird, Hayley Crawford, Chris Oliver, Lauren Shelley, Jane Waite

Abstract read
In one paragraph

Article in Journal of neurodevelopmental disorders, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
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1 · What the graph read from it

What it found

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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

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3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

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4 · The record

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PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Jessica Eliza Mingins *School of Psychology, College of Health and Life Sciences, Aston University, Birmingham, B4 7 ET, United Kingdom. jming18@aston.ac.uk.ORCID 0000-0002-1818-6881
Joanne Tarver *School of Psychology, College of Health and Life Sciences, Aston University, Birmingham, B4 7 ET, United Kingdom.
Effie PearsonSchool of Psychology, College of Health and Life Sciences, Aston University, Birmingham, B4 7 ET, United Kingdom.
Georgina EdwardsSchool of Health and Care, Coventry University, Priory St, Coventry, CV1 5FB, England.
Megan BirdSchool of Psychology, College of Health and Life Sciences, Aston University, Birmingham, B4 7 ET, United Kingdom.
Hayley CrawfordMental Health and Wellbeing Unit, Warwick Medical School, University of Warwick, Coventry, CV4 7AL, England.
Chris OliverSchool of Psychology, University of Birmingham, Edgbaston, B15 2TT, England.
Lauren ShelleySchool of Psychology, College of Health and Life Sciences, Aston University, Birmingham, B4 7 ET, United Kingdom.
Jane WaiteSchool of Psychology, College of Health and Life Sciences, Aston University, Birmingham, B4 7 ET, United Kingdom.

Funding

Autistica AutisticaCerebra Cerebra
6 · The paper itself

Abstract

backgroundThere is a critical need for the development of dependable and valid anxiety assessment tools suitable for people with moderate to severe intellectual disabilities, particularly those who speak few or no words. Distinguishing anxiety from distress caused by physical discomfort (pain) or characteristics associated with autism, prevalent in this population, necessitates specialised assessment tools. This study (a) developed a parent-report anxiety questionnaire tailored for individuals with severe to moderate intellectual disabilities, potentially with a co-diagnosis of autism, and (b) evaluated the psychometric attributes of this novel measure.

methodsA comprehensive approach involving literature reviews, inspection of existing tools, and interviews with clinicians and parents guided the creation of the Clinical Anxiety Scale for People with Intellectual Disabilities. The tool was completed by parents or caregivers (N = 311) reporting on individuals aged 4 or older with intellectual disabilities.

resultsExploratory factor analysis indicated a four-factor structure encompassing anxiety, pain, low energy/withdrawal, and consolability. The anxiety factor explained the most variance in scores (26.3%). The anxiety, pain, low energy/withdrawal subscales demonstrated robust internal consistency (α = 0.81-0.92), and convergent, divergent, and discriminant validity. Robustness of these subscales was further evidenced by test-retest reliability (ICC = 0.79-0.88) and inter-rater reliability (ICC = 0.64-0.71). Subgroup analyses consistently demonstrated strong psychometric properties among individuals diagnosed with non-syndromic autism (N = 98), children (N = 135), adults (N = 175), and across diverse communication abilities within the sample. Moreover, individuals diagnosed with both autism and anxiety exhibited significantly higher scores on the anxiety subscale compared to those without an anxiety diagnosis, while showing no difference in autism characteristic scores.

conclusionsThe findings indicate that the Clinical Anxiety Scale for People with Intellectual Disabilities is a promising measure for use across diverse diagnostic groups, varying communication abilities, and with people with moderate to severe intellectual disabilities.

Indexed as

AnxietyIntellectual DisabilityPsychometricsAdolescentAdultAutistic DisorderChildChild, PreschoolFemaleHumansMaleMiddle AgedPsychiatric Status Rating ScalesReproducibility of ResultsSurveys and QuestionnairesYoung AdultAnxietyAssessmentAutismIntellectual disabilityMeasure developmentMental HealthPainQuestionnaire

Identifiers

PMID39068415
PMCPMC11283710

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.