Evidence map›Paper›PMID 39066518›Full record

ArticleJournal of family nursing2024

Barriers and Facilitators to Youth Decision-Making Involvement in Families Referred for Stem Cell Transplant.

Ginny Lynn Schulz, Angela Christine Painter, Amy McQueen, Shalini Shenoy, James M DuBois

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of family nursing, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Ginny Lynn SchulzWashington University School of Medicine in St. Louis, MO, USA.ORCID 0000-0001-6522-5268
Angela Christine PainterGoldfarb School of Nursing at Barnes-Jewish College, St. Louis, MO, USA.
Amy McQueenWashington University School of Medicine in St. Louis, MO, USA.
Shalini ShenoyWashington University School of Medicine in St. Louis, MO, USA.
James M DuBoisWashington University School of Medicine in St. Louis, MO, USA.

Funding

WU INSTITUTE OF CLINICAL AND TRANSLATIONAL SCIENCESUL1TR002345 · NCATS · WASHINGTON UNIVERSITY · PI William G. Powderly · 2017 to 2026
$97.8M
Washington University Paul Calabresi K12 Career Development Award for Clinical OncologyK12CA167540 · NCI · WASHINGTON UNIVERSITY · PI John F. Dipersio, Ramaswamy Govindan · 2012 to 2026
$11.7M
NCATS NIH HHS UL1 TR002345NCI NIH HHS K12 CA167540NIH HHS UL1 TR002345
6 · The paper itself

Abstract

Youth prefer to be involved in treatment decisions, yet youth participation is minimally present in decisions like stem cell transplant (SCT) that require frequent medications and social isolation to be successful in curing cancer and chronic illness. The purpose of our study is to identify the barriers and facilitators to youth decision-making involvement in the youth-parent interaction when referred for treatment with SCT. We report qualitative findings from our theory-driven mixed-methods study. We thematically analyzed our field notes of youth and parent observations and audio-recordings during SCT consultations and semi-structured interviews. Data were collected from 10 youth, 8 to 16 (median 12) years of age, and their parents (

Indexed as

Decision MakingStem Cell TransplantationAdolescentAdultChildFemaleHumansMaleParent-Child RelationsParentsQualitative Researchchronic illnessdecision-makingfamilies with adolescentsfamily/participant grouphealth communicationKeywordqualitativeresearch methodology/design

Identifiers

PMID39066518
PMCPMC11907721

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.