Evidence map›Paper›PMID 39064026›Full record

ArticleJournal of personalized medicine2024

Differences in Person-Centered Care in Fetal Care Centers: Results from the U.S. Pilot Study of the PCC-FCC Scale.

Abigail B Wilpers, Katie Francis, Amy B Powne, Lonnie Somers, Yunyi Ren, Katherine Kohari, Scott A Lorch

Abstract read
In one paragraph

Article in Journal of personalized medicine, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
  4. Drivers of care and outcomes for people facing fetal conditions in the United States: a conceptual framework.Journal of perinatology : official journal of the California Perinatal Association · 2025
    Review
  5. Article
  6. Interpersonal relationships after prenatal diagnosis of congenital heart disease: Social stressors and supports.Journal of perinatology : official journal of the California Perinatal Association · 2025
    Article
  7. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Abigail B WilpersDepartment of Family and Community Health, University of Pennsylvania School of Nursing, Philadelphia, PA 19104, USA.
Katie FrancisFetal Therapy Nurse Network, Chicago, IL 60604, USA.ORCID 0000-0003-1461-1147
Amy B PowneFetal Therapy Nurse Network, Chicago, IL 60604, USA.
Lonnie SomersFetal Health Foundation, Littleton, CO 80127, USA.
Yunyi RenDepartment of Public Health Sciences, School of Medicine, University of California-Davis, Sacramento, CA 95616, USA.
Katherine KohariDepartment of Obstetrics, Gynecology & Reproductive Sciences, Yale School of Medicine, New Haven, CT 06510, USA.ORCID 0000-0001-7008-6477
Scott A LorchDivision of Neonatology, Children's Hospital of Philadelphia, Philadelphia, PA 19104, USA.

Funding

Yale Clinical and Translational Science Award (U Component)UL1TR001863 · NCATS · YALE UNIVERSITY · PI John H. Krystal, LUCILA OHNO-MACHADO · 2016 to 2026
$102.9M
NCATS NIH HHS UL1 TR001863NIH HHS 1TL1TR001864-20S22Yale National Clinician Scholars Program n/a
6 · The paper itself

Abstract

objectiveWe report findings from a U.S. mixed-methods pilot study of the Person-Centered Care in Fetal Care Centers (PCC-FCC) Scale.

methodsParticipants, who received care at a U.S. Fetal Care Center (FCC) between 2017 and 2021, completed an online questionnaire providing sociodemographic details, specifics about the care received, qualitative experiences, and scores from the PCC-FCC Scale.

resultsParticipants' (

conclusionThe PCC-FCC Scale pilot study revealed strong overall PCC in FCCs, yet variability in patient experiences suggests areas needing improvement, including expectation setting, preparation for post-intervention maternal health, and psychosocial support. Future research must prioritize diverse samples and continued mixed methodologies to better understand the role of insurance and identify other potential disparities, ensuring comprehensive representation of the FCC patient population.

Indexed as

fetal anomaliesfetal care centerfetal therapymaternal–fetal medicinenursing researchperson-centered careprenatal diagnosis

Identifiers

PMID39064026
PMCPMC11278169

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.