Evidence map›Paper›PMID 39062330›Full record

ArticleChildren (Basel, Switzerland)2024

The TRUST Study-TRansition US Together: Evaluating the Impact of a Parent- and Adolescent-Centered Transition Toolkit on Transition Readiness in Patients with Juvenile Idiopathic Arthritis and Childhood-Onset Systemic Lupus Erythematosus.

Simran Heera, Karen Beattie, Zubin Punthakee, Briano DiRezze, Julie Herrington, Tania Cellucci, Liane Heale, Mark Matsos, Jan Willem Gorter, Michelle Batthish

Abstract read
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In one paragraph

Article in Children (Basel, Switzerland), 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Trial
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Simran HeeraSchool of Rehabilitation Science, Faculty of Health Sciences, McMaster University, Hamilton, ON L8S 1C7, Canada.
Karen BeattieDepartment of Pediatrics, McMaster University, Hamilton, ON L8S 4L8, Canada.
Zubin PunthakeeDepartment of Medicine, McMaster University, Hamilton, ON L8N 3Z5, Canada.ORCID 0000-0003-4894-3617
Briano DiRezzeSchool of Rehabilitation Science, Faculty of Health Sciences, McMaster University, Hamilton, ON L8S 1C7, Canada.
Julie HerringtonSchool of Rehabilitation Science, Faculty of Health Sciences, McMaster University, Hamilton, ON L8S 1C7, Canada.ORCID 0000-0002-5159-158X
Tania CellucciDepartment of Pediatrics, McMaster University, Hamilton, ON L8S 4L8, Canada.
Liane HealeDepartment of Pediatrics, McMaster University, Hamilton, ON L8S 4L8, Canada.ORCID 0000-0002-1726-9917
Mark MatsosDepartment of Medicine, McMaster University, Hamilton, ON L8N 3Z5, Canada.
Jan Willem GorterDepartment of Pediatrics, McMaster University, Hamilton, ON L8S 4L8, Canada.ORCID 0000-0002-3012-2119
Michelle BatthishDepartment of Pediatrics, McMaster University, Hamilton, ON L8S 4L8, Canada.ORCID 0000-0001-6412-1029

Funding

Hamilton Health Sciences HAH-20-022
6 · The paper itself

Abstract

objectiveAdolescents with chronic rheumatic disease must increasingly take on more responsibility for disease management from parents as they transition from pediatric to adult care. Yet, there are limited resources to inform and support parents about transition. Here, we evaluate the impact of a Transition Toolkit, geared towards parents and adolescents, on transition readiness, and explore the potential impact of parent-adolescent communication.

methodsA prospective cohort study of youths aged 14-18 years old and their parents was performed. Participant demographics, disease characteristics, transition readiness scores (Transition-Q, max 100), and parent-adolescent communication scores (PACS, max 100) were collected at enrollment (when the Transition Toolkit was shared with adolescents and their parents. Generalized estimating equation (GEE) analyses determined the influence of the Toolkit on transition readiness and explored the role of parent-adolescent communication quality. Subgroup analyses were conducted by sex.

resultsA total of 21 patients were included; 19 completed one post-intervention Transition-Q and 16 completed two. Transition-Q scores increased over time and the rate of increase doubled after the Toolkit was shared (β = 7.8,

conclusionTransition readiness improved at each follow-up, the greatest increase was seen after the Toolkit was shared. Parent-adolescent communication quality did not appear to impact changes in transition readiness.

Indexed as

adolescent/young adultAYAchildhood-onset systemic lupus erythematosuscSLEJIAjuvenile idiopathic arthritistransition

Identifiers

PMID39062330
PMCPMC11276097

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