Evidence map›Paper›PMID 39060925›Full record

ArticleBMC palliative care2024

How end-of-life care was limited during the first 18 months of the COVID-19 pandemic: a longitudinal survey study among healthcare providers (the CO-LIVE study).

Masha S Zee, H Roeline Pasman, Erica Witkamp, Anne Goossensen, Ida J Korfage, Yvonne N Becqué, Corine Nierop-van Baalen, Agnes van der Heide, Bregje D Onwuteaka-Philipsen

Abstract read
In one paragraph

Article in BMC palliative care, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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0citing papers in PubMed
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1 · What the graph read from it

What it found

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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

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3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

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PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Masha S ZeeDepartment of Public and Occupational Health, Expertise Center for Palliative Care, Amsterdam UMC, VU University, Van Der Boechorststraat 7, Amsterdam, 1081 BT, the Netherlands. m.zee@amsterdamumc.nl.
H Roeline PasmanDepartment of Public and Occupational Health, Expertise Center for Palliative Care, Amsterdam UMC, VU University, Van Der Boechorststraat 7, Amsterdam, 1081 BT, the Netherlands.
Erica WitkampDepartment of Public Health, Erasmus MC University Medical Center, Rotterdam, The Netherlands.
Anne GoossensenUniversity of Humanistic Studies, Utrecht, The Netherlands.
Ida J KorfageDepartment of Public Health, Erasmus MC University Medical Center, Rotterdam, The Netherlands.
Yvonne N BecquéResearch Center Innovations in Care, Rotterdam University of Applied Sciences, Rotterdam, The Netherlands.
Corine Nierop-van BaalenResearch Center Innovations in Care, Rotterdam University of Applied Sciences, Rotterdam, The Netherlands.
Agnes van der HeideDepartment of Public Health, Erasmus MC University Medical Center, Rotterdam, The Netherlands.
Bregje D Onwuteaka-PhilipsenDepartment of Public and Occupational Health, Expertise Center for Palliative Care, Amsterdam UMC, VU University, Van Der Boechorststraat 7, Amsterdam, 1081 BT, the Netherlands.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundDuring the COVID-19 pandemic, the way in which end-of-life care was provided, underwent a lot of changes and therefor different domains of end-of-life care were impacted. The aim of this study is to describe whether health care providers considered end-of-life care (in medical, nursing, psychosocial and spiritual care) limited by the pandemic through the first 18 months of the COVID-19 pandemic, and examine associations with COVID-19 related circumstances of care (e.g. visit restrictions) and health care providers' characteristics.

methodsA longitudinal survey study among healthcare providers from different healthcare settings who provided end-of-life care during the pandemic's first 18 months. Data of four time periods were analyzed using descriptive statistics and Generalized Estimating Equation.

resultsOf the respondents (n = 302) the majority had a nursing background (71.8%) and most worked in a hospital (30.3%). Especially in the first wave end-of-life care in all aspects was limited according to a substantial part of health care providers (between 29.7 and 57.7%). Psychosocial and spiritual care were more limited than medical and nursing care during all time periods. Care being limited according to health care providers was associated with visit restrictions, shortness of personal protective equipment or restrictions in caring for the deceased and decreased over time.

conclusionThe COVID-19 pandemic impacted different aspects of end-of-life care throughout the pandemic's first 18 months. Over the course of the pandemic health care providers seemed to have invented ways to adjust their work in order to minimize the effect of limiting measures. More involvement of health care providers in decision-making may improve the prioritization of measures to deal with crisis situations in care. These reflections highlight priorities during crises and the role healthcare providers could play in maintaining good end-of-life care. This remains relevant in new health crises, where care may differ from what is considered good quality of care.

Indexed as

COVID-19Health PersonnelTerminal CareAdultFemaleHumansLongitudinal StudiesMaleMiddle AgedPandemicsSARS-CoV-2Surveys and QuestionnairesCOVID-19End of life careHealth care providersQuality of care

Identifiers

PMID39060925
PMCPMC11282725

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.