Evidence map›Paper›PMID 39049026›Full record

ArticleBMC medical research methodology2024

Tailored approach to participant recruitment and retention to maximize health equity in pediatric cancer research.

Carolyn R Bates, Renee M Gilbert, Kelsey M Dean, Keith J August, Christie A Befort, Shallyn Ward, Mary Gibson, Meredith L Dreyer Gillette

Abstract read
In one paragraph

Article in BMC medical research methodology, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

  1. Trial
  2. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Carolyn R BatesDepartment of Pediatrics, University of Kansas Medical Center, 2000 W Olathe Blvd, Mailstop, 4004, Kansas City, KS, 66160, USA. cbates4@kumc.edu.
Renee M GilbertDepartment of Pediatrics, University of Kansas Medical Center, 2000 W Olathe Blvd, Mailstop, 4004, Kansas City, KS, 66160, USA.
Kelsey M DeanDepartment of Pediatrics, Children's Mercy Kansas City, Kansas City, MO, USA.
Keith J AugustUniversity of Kansas Cancer Center, Westwood, KS, USA.
Christie A BefortUniversity of Kansas Cancer Center, Westwood, KS, USA.
Shallyn WardDepartment of Pediatrics, Children's Mercy Kansas City, Kansas City, MO, USA.
Mary GibsonDepartment of Pediatrics, Children's Mercy Kansas City, Kansas City, MO, USA.
Meredith L Dreyer GilletteDepartment of Pediatrics, Children's Mercy Kansas City, Kansas City, MO, USA.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundLack of diversity in participants throughout the research process limits the generalizability of findings and may contribute to health disparities. There are unique challenges to recruitment of families to pediatric cancer research studies, especially for those from disadvantaged backgrounds. Thus, there is a need to evaluate the most effective recruitment and retention strategies to optimize equitable recruitment of diverse participants.

methodsThe present study adapted and implemented methods outlined previously in the literature. These previous efforts were developed to address barriers to pediatric research, behavioral health intervention research and research with Black adolescents. Recruitment and retention strategies are described across four different time points: pre-approach, initial connection, building connection and follow-up. Eligible families of children with a pediatric cancer diagnosis were approached during a routine oncology visit. Once consented, enrollment and retention rates over three timepoints of data collection were recorded and evaluated.

resultsResults indicated high rates of enrollment (86%) and retention (95%) for eligible participants. There were no trends in heightened attrition for any specific subgroup.

conclusionsThe findings of this study are promising and suggest these recruitment and retention strategies may be useful in recruiting individuals from disadvantaged backgrounds.

Indexed as

Health EquityNeoplasmsPatient SelectionAdolescentBiomedical ResearchBlack or African AmericanChildFemaleHumansMalePediatricsDiversityHealth equityOncologyPediatricsPsychosocialRecruitmentRetention

Identifiers

PMID39049026
PMCPMC11267736

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.