Evidence map›Paper›PMID 39044762›Full record

ArticlePalliative medicine reports2024

What Keeps the Family Caregiver Motivated to Care for Their Dying Relative at Home? A Brief Report of a Qualitative Interview Study.

Julia Strupp, Alina Kasdorf, Jonas Karneboge, Raymond Voltz

Abstract read
In one paragraph

Article in Palliative medicine reports, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Julia StruppDepartment of Palliative Medicine, Faculty of Medicine and University Hospital, University of Cologne, Cologne, Germany.
Alina KasdorfDepartment of Palliative Medicine, Faculty of Medicine and University Hospital, University of Cologne, Cologne, Germany.ORCID https://orcid.org/0000-0002-4982-9288
Jonas KarnebogeDepartment of Psychology, Psychological Aging Research (PAR), Faculty V: School of Life Sciences, University of Siegen, Siegen, Germany.
Raymond VoltzDepartment of Palliative Medicine, Faculty of Medicine and University Hospital, University of Cologne, Cologne, Germany.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background: Dying at home poses many challenges for family carers and is particularly distressing for those with limited social support. In addition to financial hardship, this perceived burden may be a deciding factor in providing care at home. Aims: To explore what motivates people to provide care at home until death. Methods: Qualitative interviews with 43 family carers of deceased patients about factors enabling death at home. Interviews were audio-recorded, transcribed verbatim, and analyzed using content analysis. Results: Participants who rated their end-of-life experience positively reported that they particularly benefited from encouraging feedback and gratitude from their dying loved ones, as well as appraisal support. It takes courage to care for someone at home and to feel responsible for them. These themes made the participants' home care efforts meaningful, gave them confidence in what they were doing and helped maintain their motivation to care. Conclusion: Encouraging feedback and appraisal support are both minimally invasive techniques with maximum impact for continuing care at home.

Indexed as

caregiverdying at homeend of lifehome carequalitative study

Identifiers

PMID39044762
PMCPMC11262578

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.