ArticleNeurourology and urodynamics2024
"There is a lot of shame that comes with this": A qualitative study of patient experiences of isolation, embarrassment, and stigma associated with overactive bladder.
Article in Neurourology and urodynamics, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.
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Who cites it
8 citing papers in PubMed.
- The status of health-related quality of life among older adults with overactive bladder: a cross-sectional analysis of the Yamagata Cohort Study in Japan.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026Article
- Navigating the challenges of overactive bladder management in women.World journal of urology · 2026Review
- Shared Decision Making, Decision Aids and Patient Reported Outcome Measures for Overactive Bladder Care: A Review.Current bladder dysfunction reports · 2026Review
- Health Disparities and Overactive Bladder: Bridging the Gap.Current bladder dysfunction reports · 2026Review
- Social Isolation Among Individuals with Incontinence: A Scoping Review.Nursing reports (Pavia, Italy) · 2025Review
- Article
- The Role of Artificial Intelligence in Urogynecology: Current Applications and Future Prospects.Diagnostics (Basel, Switzerland) · 2025Review
- Evaluation of anxiety, embarrassment, and pain associated with cystoscopy in the operating room: a male population sample.Revista da Associacao Medica Brasileira (1992) · 2025Article
Corrections and comments
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Authors and funding
11 authors.
Funding
Abstract
aimsBeyond causing physical discomfort, overactive bladder (OAB) is distressing to patients across a variety of psychosocial domains. In this qualitative component of a larger mixed methods study, we explore patients' lived experience with OAB to understand how this condition impacts individuals on a personal and social level, as well as their experiences interacting with the health care system.
methodsA total of 20 patients and 12 physicians completed a questionnaire and semi-structured interview. The interview guide, developed in an iterative fashion by the authors, included questions about treatment decision making as well as experiences living with or treating OAB; this manuscript focuses on the questions probing lived experiences and interactions between patients and physicians. The interviews were recorded, transcribed and inductively coded and analyzed according to the principles of interpretive description to develop themes.
resultsAnalysis of patient and physician interviews yielded five key themes: isolation due to OAB diagnosis, social stigma associated with noticeable OAB symptoms, embarrassment from interactions with the health care system, feeling invalidated and dismissed by physicians, and OAB patients as a "vulnerable" population with "desperation" for cure.
conclusionsOAB causes patients marked distress beyond their physical symptoms; it causes feelings of isolation from friends and family and makes them feel embarrassed to discuss their condition with loved ones and physicians alike. Efforts to destigmatize OAB, validate patient experiences, and improve access to OAB care may help diminish the psychosocial burden of OAB.
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Registered trials
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