Evidence map›Paper›PMID 39036526›Full record

ArticleLearning health systems2024

Experiences and lessons learned from a patient-engagement service established by a national research consortium in the U.S. Veterans Health Administration.

Tracy L Sides, Agnes C Jensen, Malloree M Argust, Erin C Amundson, Gay R Thomas, Rebecca Keller, Mallory Mahaffey, Erin E Krebs

Abstract read
In one paragraph

Article in Learning health systems, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed.

  1. Article
  2. Article
  3. Meta-Research on the Science of Lived Experience Engagement in Mental Health and Substance Use Health Research: A Scoping Review and Qualitative Synthesis.Health expectations : an international journal of public participation in health care and health policy · 2026
    Article
  4. Meeting People Where They Are: Strategies for Improving Rural Representation in Clinical Research through Pragmatic Clinical Trials.The Journal of rural health : official journal of the American Rural Health Association and the National Rural Health Care Association · 2026
    Article
  5. Article
  6. Article
  7. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Tracy L SidesCenter for Care Delivery and Outcomes Research, Minneapolis Veterans Affairs (VA) Health Care System Minneapolis Minnesota USA.ORCID https://orcid.org/0000-0001-7459-0451
Agnes C JensenCenter for Care Delivery and Outcomes Research, Minneapolis Veterans Affairs (VA) Health Care System Minneapolis Minnesota USA.
Malloree M ArgustCenter for Care Delivery and Outcomes Research, Minneapolis Veterans Affairs (VA) Health Care System Minneapolis Minnesota USA.
Erin C AmundsonCenter for Care Delivery and Outcomes Research, Minneapolis Veterans Affairs (VA) Health Care System Minneapolis Minnesota USA.
Gay R ThomasGR Thomas Advisors, LLC Fort Myers Florida USA.
Rebecca KellerU.S. Military Veteran Red Wing Minnesota USA.
Mallory MahaffeyCenter for Care Delivery and Outcomes Research, Minneapolis Veterans Affairs (VA) Health Care System Minneapolis Minnesota USA.
Erin E KrebsCenter for Care Delivery and Outcomes Research, Minneapolis Veterans Affairs (VA) Health Care System Minneapolis Minnesota USA.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Introduction: Meaningful engagement of patients in the research process has increased over the past 20 years. Few accounts are available of engagement infrastructure and processes used by large research organizations. The Pain/Opioid Consortium of Research (Consortium) is a U.S. Department of Veterans Affairs (VA) research network that provides infrastructure to accelerate health research and implementation of evidence-based health care. The Consortium's key activities include facilitating Veteran-engaged research and building community between Veterans and VA researchers. This report sought to describe experiences and lessons learned from the first 3 years of a national research engagement service, featuring a Veteran Engagement (VE) Panel, established by the Consortium. Methods: We gathered authors' experiences to describe development and operation of the Consortium's VE Panel. Engagement staff collected program evaluation data about partners (Veterans and researchers), projects about which the VE Panel consulted, and meeting attendance during operation of the engagement service. Results: We created a 12-member VE Panel; all of whom had lived experience with chronic pain, prescription opioid medication use, or opioid use disorder. Engagement staff and VE Panel members implemented an engagement service operational model designed to continuously learn and adapt. The panel consulted on 48 projects spanning the research process. Seventy-eight percent of panel members, on average, attended each monthly meeting. VE Panel members and participating researchers reported high satisfaction with the quality, ease, and outcomes of their engagement service experiences. Conclusions: This work provides an illustrative example of how a national research consortium facilitated Veteran-engaged research and built community between Veterans and VA researchers by developing and operating an ongoing engagement consulting service, featuring a VE Panel. The service, designed as a learning community, relied on skilled engagement staff to cultivate high quality experiences and outcomes for all partners.

Indexed as

engagement infrastructurepatient‐centered researchpatient engagementresearch networksVeterans

Identifiers

PMID39036526
PMCPMC11257060

What OpenQuestion holds

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.