Evidence map›Paper›PMID 39032151›Full record

ArticleHealth expectations : an international journal of public participation in health care and health policy2024

Development of Fewer Falls in MS-An Online, Theory-Based, Fall Prevention Self-Management Programme for People With Multiple Sclerosis.

Susanna Tuvemo Johnson, Charlotte Ytterberg, Elizabeth Peterson, Sverker Johansson, Marie Kierkegaard, Kristina Gottberg, Maria Flink

2 registry-linked trialsAbstract read
In one paragraph

Article in Health expectations : an international journal of public participation in health care and health policy, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to 2 registered trials, which are not on this map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT04317716 nacompletednot on this map

A Self-management Program to Prevent Falls in Ambulatory and Non-ambulatory Community Dwelling People With Multiple Sclerosis

TypeinterventionalSponsorKarolinska InstitutetRan2022 to 2022Enrolled45ConditionsMultiple SclerosisArmsfall prevention program, Brochure about falls and fall risk factors
NCT05789225 nacompletednot on this map

Evaluation of a Self-management Program to Prevent Falls in Ambulatory and Non-ambulatory People With Multiple Sclerosis

TypeinterventionalSponsorKarolinska InstitutetRan2024 to 2025Enrolled240ConditionsMultiple SclerosisArmsFall prevention program, Brochure
3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Trial
  2. Making Room for Every Voice: Reimagining Person-Centred Care in the Neurosciences.Health expectations : an international journal of public participation in health care and health policy · 2025
    Article
  3. Effectiveness ofBMJ open · 2025
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Susanna Tuvemo JohnsonDepartment of Neurobiology, Care Science and Society, Karolinska Institutet, Stockholm, Sweden.ORCID 0000-0003-0527-0627
Charlotte YtterbergDepartment of Neurobiology, Care Science and Society, Karolinska Institutet, Stockholm, Sweden.ORCID 0000-0003-3704-8887
Elizabeth PetersonDepartment of Occupational Therapy, College of Applied Health Sciences, University of Illinois Chicago, Chicago, Illinois, USA.ORCID 0000-0001-7436-3478
Sverker JohanssonDepartment of Neurobiology, Care Science and Society, Karolinska Institutet, Stockholm, Sweden.ORCID 0000-0002-8654-5962
Marie KierkegaardDepartment of Neurobiology, Care Science and Society, Karolinska Institutet, Stockholm, Sweden.ORCID 0000-0001-7896-7682
Kristina GottbergDepartment of Neurobiology, Care Science and Society, Karolinska Institutet, Stockholm, Sweden.ORCID 0000-0001-9050-4584
Maria FlinkDepartment of Neurobiology, Care Science and Society, Karolinska Institutet, Stockholm, Sweden.ORCID 0000-0003-0536-0024

Funding

This work was supported by the Swedish Research Council, the Swedish Research Council for Health, Working Life and Welfare (FORTE), the Strategic Research Area Healthcare at the Karolinska Institutet (SFO-V), the Research School in Health Science and Neuro Sweden.
6 · The paper itself

Abstract

objectiveThe aim of this study was to describe the process used to develop a theory-based, online fall prevention self-management programme for ambulatory and non-ambulatory people with multiple sclerosis (pwMS).

methodsThe development process was guided by the Medical Research Council framework of complex interventions and began with a scoping review of the literature on self-management of falls in pwMS. Subsequent phases of development were performed through iterative and concurrent processes and were informed by the perspectives of pwMS and healthcare professionals with MS expertise.

resultsThrough a systematic and iterative process in close collaboration with pwMS and healthcare professionals, a theory-based online fall prevention self-management programme, Fewer Falls in MS, for ambulatory and non-ambulatory pwMS was developed. The programme is grounded in theory and pedagogical models and features utilization of action plans to address diverse influences on fall risks.

conclusionsA carefully operationalized definition of self-management and an iterative co-development process were essential to the creation of the Fewer falls in MS programme. Continuation of the co-development process and collaboration with end users was needed to refine the programme. PATIENT OR PUBLIC CONTRIBUTION: PwMS and healthcare professionals were involved throughout the development process of the programme. The patient organization Neuro Sweden was contacted in the initial phase to discuss the relevance of a self-management programme to prevent falls in MS. They supported the research group (all authors) in identification of and contact with pwMS with interest to participate. Three members of the research group (S.T.J., M.F. and C.Y.), that is, the operative group, met neuro Sweden and one pwMS to further discuss the relevance of a self-management programme to prevent falls. To develop the process and content of the fall prevention programme, a co-design process was performed together with pwMS and healthcare professionals. The results of the co-design process are presented in this manuscript. In addition to participating in the co-design process, pwMS and healthcare professionals provided feedback to the research group on programme process and content on several occasions during the subsequent programme development process. In a pretest (Beta version) of the programme, four pwMS acted as test subjects and provided additional feedback on the programme to the research group.

trial registrationNCT04317716.

Indexed as

Accidental FallsMultiple SclerosisSelf-ManagementFemaleHumansInternetMaleProgram DevelopmentSelf Careaction plancomplex intervention developmentend‐user collaborationgroup‐based interventionmultifactorial falls management

Identifiers

PMID39032151
PMCPMC11259746

What OpenQuestion holds

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LicenceCC BY
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.