ArticleDevelopmental medicine and child neurology2025
Experiences of health services for adults with cerebral palsy, their support people, and service providers.
Article in Developmental medicine and child neurology, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
6 citing papers in PubMed.
- The Cerebral Palsy Link Worker (CP LINK) study: Protocol for a feasibility study with integrated process evaluation.PloS one · 2026Article
- Families' Strategies for Navigating Care for Their Child With Cerebral Palsy: A Qualitative Study.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Transitioning health care for adults with cerebral palsy.Developmental medicine and child neurology · 2025Article
- Experiences of health services for adults with cerebral palsy, their support people, and service providers.Developmental medicine and child neurology · 2025Article
- CP-EXCEL: A feasibility randomised controlled trial of an online exercise programme for adults with cerebral palsy.HRB open research · 2025Article
- The state of employment in the United States among young adults with cerebral palsy.Health care transitions · 2024Article
Corrections and comments
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Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
aimTo explore the experiences of health services among adults with cerebral palsy (CP) in Ireland, from the perspectives of adults with CP, their support people, and service providers.
methodA qualitative descriptive study design was used. In-depth semi-structured interviews were conducted between March and August 2021 with adults with CP, people who supported them, and health professionals. Thematic analysis was used to evaluate the data.
resultsTwenty-one adults with CP, seven support people (family carer[s], spouse or partner, or friend), and 15 service providers participated in the study. Adults had a mean age of 38 years 5 months (range 22-58 years) and were classified in Gross Motor Function Classification System levels I to V. Five themes were identified from the data: (1) access challenges in adult services; (2) knowledge and understanding of CP; (3) support people's role and care burden; (4) communication and interaction in adult services; and (5) health system challenges.
conclusionAdults with CP in Ireland face multiple challenges accessing the health services they need. Services were reported to be inadequate, with limited resources and understanding of CP. Participants highlighted a need for system-level interventions, including enhanced training for health professionals to effectively meet the needs of adults with CP.
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Registered trials
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