Evidence map›Paper›PMID 39026320›Full record

ArticleBMC pulmonary medicine2024

Attitudes toward and preparedness for lung transplantation among individuals with cystic fibrosis in the era of highly effective modulators.

Nora Burdis, Siddhartha G Kapnadak, Lauren E Bartlett, Oliver McElvaney, Tijana Milinic, Travis Hee Wai, Allison V Lange, Nick Reid, Jordan M Dunitz, Joanne L Billings and 5 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in BMC pulmonary medicine, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

15 authors.

Nora BurdisDepartment of Medicine, Division of Pulmonary, Critical Care, and Sleep Medicine, University of Washington, 1959 NE Pacific St, Box 356522, Seattle, WA, 98195, USA. nburdis1@uw.edu.
Siddhartha G KapnadakDepartment of Medicine, Division of Pulmonary, Critical Care, and Sleep Medicine, University of Washington, 1959 NE Pacific St, Box 356522, Seattle, WA, 98195, USA.
Lauren E BartlettDepartment of Medicine, Division of Pulmonary, Critical Care, and Sleep Medicine, University of Washington, 1959 NE Pacific St, Box 356522, Seattle, WA, 98195, USA.
Oliver McElvaneyDepartment of Medicine, Division of Pulmonary, Critical Care, and Sleep Medicine, University of Washington, 1959 NE Pacific St, Box 356522, Seattle, WA, 98195, USA.
Tijana MilinicDepartment of Medicine, Division of Pulmonary, Critical Care, and Sleep Medicine, University of Washington, 1959 NE Pacific St, Box 356522, Seattle, WA, 98195, USA.
Travis Hee WaiDepartment of Medicine, Division of Pulmonary, Critical Care, and Sleep Medicine, University of Washington, 1959 NE Pacific St, Box 356522, Seattle, WA, 98195, USA.
Allison V LangeDivision of Pulmonary Sciences and Critical Care Medicine, Department of Medicine, University of Colorado Anschutz Medical Campus, Aurora, CO, USA.
Nick ReidDepartment of Biomedical Informatics and Medical Education, University of Washington, Seattle, WA, USA.
Jordan M DunitzDivision of Pulmonary, Allergy, Critical Care and Sleep Medicine, Department of Medicine, University of Minnesota, Minneapolis, MN, USA.
Joanne L BillingsDivision of Pulmonary, Allergy, Critical Care and Sleep Medicine, Department of Medicine, University of Minnesota, Minneapolis, MN, USA.
Joseph M PilewskiDivision of Pulmonary, Allergy & Critical Care Medicine, University of Pittsburgh Medical Center, Pittsburgh, PA, USA.
Milene SaavedraDepartment of Medicine, National Jewish Health, Denver, CO, USA.
Christopher H GossDepartment of Medicine, Division of Pulmonary, Critical Care, and Sleep Medicine, University of Washington, 1959 NE Pacific St, Box 356522, Seattle, WA, 98195, USA.
Andrea L HartzlerDepartment of Biomedical Informatics and Medical Education, University of Washington, Seattle, WA, USA.
Kathleen J RamosDepartment of Medicine, Division of Pulmonary, Critical Care, and Sleep Medicine, University of Washington, 1959 NE Pacific St, Box 356522, Seattle, WA, 98195, USA.

Funding

Translational Research Center to Expedite Novel Therapies in Cystic FibrosisP30DK089507 · NIDDK · SEATTLE CHILDREN'S HOSPITAL · PI Christopher Hooper Goss · 2010 to 2026
$21.4M
University of Washington Biomedical Informatics and Data Science Research Training ProgramT15LM007442 · NLM · UNIVERSITY OF WASHINGTON · PI JOHN H. GENNARI, Andrea L. Hartzler · 2002 to 2026
$19.6M
Palliative Care Research Training GrantT32HL125195 · NHLBI · UNIVERSITY OF WASHINGTON · PI KROSS, ERIN KATHRYN, SHARMA, RASHMI K. · 2015 to 2024
$3.2M
Predicting survival and planning for lung transplantation in severe cystic fibrosisK23HL138154 · NHLBI · UNIVERSITY OF WASHINGTON · PI RAMOS, KATHLEEN JESSICA · 2017 to 2021
$947k
Cystic Fibrosis Foundation RAMOS17A0NHLBI NIH HHS T32 HL125195NIDDK NIH HHS P30 DK089507NIH HHS K23HL138154NIH HHS P30 DK089507NIH HHS T32 HL125195NLM NIH HHS T15 LM007442
6 · The paper itself

Abstract

backgroundOutcomes for individuals with cystic fibrosis (CF) have improved due to highly effective modulator therapy (HEMT). However, lung transplant (LTx) remains an important treatment for people with advanced lung disease. This study assessed attitudes and knowledge about LTx in the HEMT era.

methodsAll patients from the University of Washington CF clinic were surveyed March 25-May 30, 2020. Questions addressed self-rated LTx preparedness and knowledge, as well as barriers and facilitators to discussing LTx. Demographic and clinical data were extracted from the electronic health record.

resultsThere were 159/224 (71%) responses. Respondents had a median forced expiratory volume in one second (FEV

conclusionsMany individuals with CF, especially those with lower socioeconomic status, lacked knowledge and did not feel very prepared for decisions about LTx. Earlier education and discussions about LTx represent an area for improvement in CF care.

Indexed as

Cystic FibrosisHealth Knowledge, Attitudes, PracticeLung TransplantationAdultFemaleHumansMaleMiddle AgedQuality of LifeSurveys and QuestionnairesYoung AdultCFCystic FibrosisLung TransplantationMedical Decision Making

Identifiers

PMID39026320
PMCPMC11256549

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.